As a parent, we always try to provide everything our child needs all on our own. It's hard asking for help. But, sometimes we must swallow our pride and do what is best for our babies. Especially, one with so many mandatory health needs. Please, find it in your heart to donate. Even a little bit would mean so much to me and my family. Jaxson is in need of proper transportation that is wheel chair accessable and, seeing as our funds are limited, we simply can not do it on our own. We ask that you find it within your hearts to help this little boy be able to safely make it to and from his various doctor visits as safely and comfortably as possible. These donations will go towards putting a down payment on a van that is wheelchair accessible for our sweet little man. We love Jaxson with all of our hearts and just wish to make him as comfortable as possible for as long as we have time left with him. Please, help us make that possible.
List of medical complications that Jaxson suffers from:
Genesis of corpus callosum
Colpocephaly
Coarctation of aorta had heart surgery at Vanderbilt hospital on 12/24/19 @ 1 month old on. Ventilation for 4 days.
Optic nerve hypoplasia blindness.
Dyshagia
Polymicrogyria
Spastic quadriplegic cerebral palsy.
Feeding difficulties tube feeding. 12/9/20 surgery for gtube hospital overdosed on medication and was put in the picu for 18 days and forced to have a fundoplaction surgery and gtube placement.
Reactive airway disease Lung disorder with secretions.
Diagnosed with Lennox gastaut syndrome with status epilepticus. Had surgery on July 9th for a vns placement to help control seizures at home. He has had testicle surgery, heart surgery, 2 stomach surgeries for gtube and to tie off his esophagus. Then he had vns surgery.
He has nursing care 60 hours a week to help give him the best possible care in his life.
We are asking for a go fund me for funds raised to go towards a wheelchair accessibility van to help take Jaxson to and from his 13 specialist appointments, ranging from tri city's to Nashville. Without a van its making it very hard for us as parents take him and have all his equipment with him. Please, help us in anyway you can. However small. Anything would be appreciated. Let's show Jaxson some humanity and love for as long as he's with us. Thank you from the bottom of our hearts.