Hi,

A heartfelt Thank you for reading our story

We are a family from Surrey.

Three years ago, our son Gurmoh was born—and he brought a kind of happiness we didn’t know was possible. His laugh fills our home. His smile stops time. He is the heartbeat of our family.

A DEVASTATING DIAGNOSIS

At just three years old, we were told Gurmoh has a rare genetic condition: Spastic paraplegia de novo c.1496G>A

This means his body will slowly lose the ability to move the way it should.

It means stiffness. Pain. Progressive weakness.
It means walking could become harder… and one day, impossible. As per the doctors our son will lose the ability to walk and will be in wheelchair by the age of 10. The disease could also take away the abilities in arms, speech and cognition. It takes away the child from you and there is nothing you could do to stop it.

It means we may have to watch our son lose abilities no child should ever lose.

And the hardest part… is feeling helpless to stop it.

There is currently no treatment.

Not because science isn’t capable.
Not because researchers aren’t ready.

But because rare diseases like SPG4 don’t receive enough funding.

If every child mattered for government and big pharmaceutical companies we wouldn’t have to do this personally

THERE IS HOPE

We know change is possible.

A few years ago, a child with another similar rare condition (SPG50) received life-changing treatment—because generous funding made it happen. In just two years, research turned into real therapy.

That story proves something powerful:
when funding meets science, progress happens.

The science exists. The researchers are ready. They know how to make the cure. What’s missing is the funding to turn that work into treatment.

OUR MISSION

We are raising funds to support research that could lead to treatment for SPG4.

This isn’t just for Gurmoh.
It’s for other children and families facing the same fear, the same heartbreak.

This is bigger than us.

WHY WE NEED YOUR HELP

The cost of research is far beyond what one family can carry.

We have already given everything we can—our savings, our time, our energy.
It’s not easy to ask for financial help, but we have no other choice.

We are asking, from the bottom of our hearts:
please help us fight for our son.

TIME IS CRITICAL

Gurmoh is only three years old.

The nerves that degenerate before he gets treatment cannot be repaired back.

The more abilities he loses, the harder they are to regain.
Every second , every minute matters.

Early intervention could mean the difference between losing mobility… or preserving it.

HOW YOU CAN HELP

Donate whatever you can—every dollar makes a difference

Share Gurmoh’s story with others

Keep him in your thoughts and prayers

MESSAGE FROM OUR FAMILY

Gurmoh deserves a life full of movement, freedom, and possibility.

With your help, his story doesn’t have to be one of loss—
it can be one of hope, strength, and a brighter future.

From our family to yours, thank you for listening—and for standing with Gurmoh