A Mother's Fight: Overcome SMA Syndrome

Hello everyone! I hate to ask for help, I’ve never been someone to ask for favors but I need your help to try and get a surgery to save my life. I am very sick. I have something called SMA syndrome and it has progressed very drastically. I can’t eat, I have a feeding tube, I’m very weak and I’m in pain 24/7. I spend half my time in the hospital and the other half just trying to be the best mom I can be to my girls at home. When I am home and not admitted into the hospital I’m at doctors appointments weekly to check for bowel obstruction and to check my weight and labs. I can’t work, hangout with friends, go on a date with my husband, grocery shop, or even take my kids to the park. I’m stuck at home all the time because of the condition I am in. I am miserable. My doctors have spent months sending referrals out of state, to different county’s and specialist trying to find a doctor to help me. To save me. Well we finally found a doctor who is going to try and help. To save my life and change it completely. July 9th I’m going to have a very big surgery that makes a new passage way for food. Hopefully after this surgery it will relieve the compression that is blocking my intestine and I can gain weight to keep my intestines from losing blood flow or obstructing. I’m asking for help because this is going to be out of town at Vanderbilt hospital and a very long hard recovery. It is a very dangerous surgery but I need it. My husband is going to have to be out of work for awhile to try and help me and take care of our children because I will not be able. We just bought a house before I started getting sick and everyone knows how hard it is to get by as is now days, but with my husband being out of work for my surgery it will be nearly impossible to make ends meet. It won’t be possible. I have no other way. If I don’t have this procedure I won’t make it and I just want to be here for my babies. I need to survive. I want to live and actually be alive. My biggest goal is to just give my girls a good childhood. Good parents. Love. If anyone could donate to help with the travel and cost of bills afterwards I would appreciate it more than you know. You would personally help save me. If you can not donate that is okay just please pray! Keep us in your thoughts. Pray that’s gods hands are over me during surgery and recovery. We appreciate any help! Everything donated will go directly towards the surgery travel, and bills so I can recover. If you read this far THANK YOU!

UPDATE- I have made it through surgery, thank you to everyone who has prayed and donated! Recovery is going a lot differently than expected. I’ve had some complications and I’m still having a hard time eating and getting through the day but I’m still full of hope! The hard part is over now it’s just trying to accept my new reality! I’ve now got an incisional hernia that might need to be operated on, we just don’t know when! I will also have to have another surgery on my fallopian tubes. I had them removed during my c section last year in July when Peyton was born and what was left of the tube has filled with fluid..they are wanting to do a second tubal ligation… my Follow up with my surgeon is August 12th right now but may get changed to sooner depending on how he’s wanting to treat me going forward! I hate to ask for any more help but if anyone feels led to donate to help us get back to Nashville in August and treatment going forward I would truly appreciate it! Thank every single one of you for the support you’ve given my family so far, and all the prayers prayed. The good news is I’m still here and I’m still fighting! We will get through this!

ANOTHER UPDATE- My appointment got changed from August 12th to this Tuesday August 5th to discuss the after surgery care and next steps! I definitely need extra prayers. I don’t want another surgery but this may just be a stepping stone! I will do whatever I have to do to get better.