Hannah and Josh are going their own route of treatment and are taking Lawson to Louisiana for hyperbaric oxygen therapy. In a short explanation, his hyperbaric doctor says this oxygen therapy is to stop cell death and stimulate tissue growth due to the high flow of oxygen that Lawson will be taking in. They are hoping this will help Lawson’s brain grow and for him to start reaching his developmental milestones. If Lawson shows improvements they will be able to buy a portable hyperbaric oxygen tank to continue therapy while at home. The research that there is sounds promising and there has been great success stories, but the treatment is not FDA approved and all expenses will be out of pocket.
You can follow Baby Lawson's story on Facebook.. https://www.facebook.com/groups/149219698994650/
December, 17th 2017
"This past week was one long week. Lawson had a neurology and high risk appointment, as well as an EEG. Monday was his neurology appointment and that was the one we anticipated the most. As we walked into the neuro clinic you could just see the difference in kids in the waiting room, physically and mentally. It put immediate fear in me.
Once we saw our nurse practitioner she began to ask us milestone questions about Lawson. I could hear myself saying no to every single question and trying to stay strong at the same time. You could see the immediate discouragement in her face as well. One of the main questions that stuck out to me was “does he cackle and laugh?” I had to say no to this question as well. As a parent you know one of the best things in life is to see your child laugh and be full of joy.
As the doctor arrived he begin to replay our NICU visit to us. He examined Lawson and asked us more questions. Thankfully he was a very nice doctor. He began to explain that Lawson’s head circumference is not where it should be. It should be around 41cm and his is 35.5cm. In other words, his brain is not growing. He also said that Lawson is at increased risk for seizures and we need to watch carefully for certain signs. But worst of all, he said Lawson is severely developmentally affected by his HIE. I can’t count how many times the doctor and nurse practitioner told me they were sorry. They seemed sincere and caring, but for me that broke my heart even worse. The flood of emotions ran back over Josh and I just as it had in the beginning. The beginning of this week was tremendously hard on us.
Through the emotions I could hear Josh talk about God and try to get me through what I was feeling, but I wasn’t listening. That was the LAST person I wanted to talk about. The whole drive home I felt so numb. Almost like I was outside looking in. As we pulled in our driveway I had family already waiting for me in my house. At that moment I didn’t want them, but now they will have no idea how much their support pulls us through. I can’t even begin to explain how difficult Monday and Tuesday was for us as a family. Not only were we dealing with discouraging news of Lawson’s future, we were also attending services for the passing of my Papa Fred.
It was so difficult for me to get up on Tuesday morning and know that we would have to lay my grandfather to rest. All at the same time I was dealing with what I felt like was my own loss. As the preacher began to speak at the funeral all I could think about was how my mom was hurting for so many reasons that day. The preacher reflected so honestly and pure about my grandpa. As the preacher spoke he kept discussing things that hit right at home for me. He mainly talked about getting through the storm that God puts us through. Even though I was there for the death of my grandpa and should be sad for him, I found myself happy for him. He lived a long wonderful life and he was the luckiest man alive to be in Heaven. At this point, I was tearful and couldn’t help but think how ready I am for Jesus to come back to this earth. If your not ready, get ready. If you feel fear as I say he is coming soon, then get things right and get closer... now. Don’t wait any longer. You aren’t promised tomorrow.
As Tuesday passed Josh and I were both in great spirits. We believe the Word of God and we will live by it even in our troubling days. On Friday, Lawson saw high risk clinic. At this appointment we found out that Lawson isn’t the weight he should be. This is something we already knew. I work really hard everyday to feed Lawson. The nutritionist came up with a slightly different plan in order for us to try to get him to gain more weight. This is very important because in order for Lawson’s to grow developmentally he needs nutrition and sleep. Which sleep is a whole separate problem. We also had a EEG on Friday which we have not got the results back from yet.
In the prime of your life you think you know exactly what you want, or at least I did. I would tell everybody how many kids I wanted, where I wanted to live, the house I wanted to build, the career I wanted. Everybody thinks they can plan these things out themselves. I have found it doesn’t work that way. God is your life planner, not you. Even after the super discouraging news we received on Tuesday, Josh and I are God’s #1 fans. As I said before, if you feel fear or sad when you think of Jesus coming back, sit down and reflect on your life and pray, pray pray.. for yourself and for others. Witness to others and ask people to church. Get ready and do your best to get others ready. " - Hannah Cagle
“Since, then, you have been raised with Christ, set your hearts on things above, where Christ is, seated at the right hand of God. Set your minds on things above, not on earthly things. For you died, and your life is now hidden with Christ in God. When Christ, who is your life, appears, then you also will appear with him in glory. Put to death, therefore, whatever belongs to your earthly nature: sexual immorality, impurity, lust, evil desires and greed, which is idolatry. Because of these, the wrath of God is coming. You used to walk in these ways, in the life you once lived.”
“Never again will they hunger; never again will they thirst. The sun will not beat down on them,’nor any scorching heat. For the Lamb at the center of the throne will be their shepherd; ‘he will lead them to springs of living water.’‘And God will wipe away every tear from their eyes.”
- Robin Buckwalter
- Payton Edmondson
- Steve Barry
- Catherine Fabre
- Nicea Barry
Organizer and beneficiary
#1 fundraising platform
More people start fundraisers on GoFundMe than on any other platform. Learn more
In the rare case something isn’t right, we will work with you to determine if misuse occurred. Learn more
Expert advice, 24/7
Contact us with your questions and we’ll answer, day or night. Learn more