A life for Marzi

Testimonials Anna Kerr 'Amara experiences more pain and suffering in her body from minute to minute than most are likely to experience in their lifetime. Somehow she finds the will to fight, every single second of every single minute of every single day. The daily life-threatening agonizing symptoms caused by her illnesses are more than most can fathom or could possibly bear. Her resilience is astounding and her determination mighty. Please give. Please give to help Amara afford the very basics of care that she must ask for. Please give to help relieve some her terrible suffering so that she may have a little more comfort. Please give.' John Neiss 'I feel absolutely horrible about what Amara has gone through. As a chronically ill person, it is hard to describe the depths of pain that we go through. Really, it is beyond description. Please help. Please help if you can.' Leonie McFaull 'Have you ever had an illness no one could diagnose and treat easily? Have you had incredible pain, seizures, spasms, and your plans and dreams, let's face it normal every day life ripped from you? Amara has and she deserves every effort to turn this around! We think of torture as something in wars or novels, torture can be daily if people don't help to bring the needed care. Please help Amara, don't let her suffering, her torture continue. Give love, give peace, give help.' A Life for Marzi Amara is a friend of mine who is struggling to be alive, to stay alive and to keep going. She is an erudite, lovely person who suffers from a complex medical condition that most people barely understand. She has suffered neurological symptoms that makes it difficult for her to continue even basic communication with friends and family. Her body is challenged continually and for all intend and purposes she is one of the living dead. Denied those basic steps in life that make us happy and feel alive, denied taking chances and being hurt. Marzi (my name for her) could be your sister, your daughter or wife. Marzi did not volunteer to spend a life confined to a controlled environment just to survive another day. I suggest reading her  blogs ‌, even those are less frequent as the damage caused by neurological events impacts on her ability to write and express herself. Just a simple phone call can trigger a seizure, paralysis and the loss of ability to breathe. Sounds all too incredible? Well, not really! Marzi suffers from a complex medical condition that even Doctors have problems coping with. Marzi has a lovely sense of humour, she inspires others but right now she is fading. She has told her story; there are videos ( Marzi+chemicals= ‌ ,  Save Amara's Life ‌,  Amara and Lyme Disease in Australia ‌) and lots of medical reports for those that take an interest in such matters. Marzi and I talk as often as her medical conditions allow. Even on the phone I can tell when Marzi is no longer able to continue talking. One moment in time we are sharing ideas and memories and the next Marzi is no longer there, noises fill the room and the line goes dead. Those are the times that I dread most knowing that Marzi is having seizures or possibly stopped breathing lost in paralysis. And that could be her last time! Often it takes extended periods for her to recover, her memory of previous talks seriously impaired. She apologises to me for the failings of her body, tries to maintain a semblance of what we think are accepted protocols when talking with others. I keep asking her not to apologize, I know her conditions all too well and even a five minute conversation between friends is a gift and not a given. Marzi is much loved by friends but reality is that any one that has to depend on others for total support causes a strain on relationships in a world where people have to be perfect and able to respond quickly. Marzi does respond, in her own time and way. She and I have shared much and Marzi has taught me a lot about her medical condition (one that also impacts on many others). Sadly, for many reasons, there has been little Governmental or other recognition of the reality of her daily suffering and struggle for survival. (That too impacts on many other Australians and others in the Global Community). Have a look at her photos , the journey of my friend Marzi. Yes, that is Amara Campbell. Marzi asked me one question before we became friends - “Would I be able to cope with her having seizures and crawling around on the floor?” Yes, I can cope. I am fit and healthy. Marzi is not; her life is what we in Australia call a 'Mongrel'. I do not know if I would have the strength to be a 'Marzi' and keep fighting and inspiring others! Would you? Marzi is a real human being, not some academic construct. If you want to make a difference in the life of Amara, support her with a donation. If not, look at her photo’s, that could be your wife, daughter or sister. The more we learn about this medical condition we have learned that others are exposed to vectors that carry blood borne diseases that trigger conditions that make the life of 'Marzi' hell on earth. Yes, I am a friend and I am biased because I see her fade at times! Make a difference for Marzi (Amara) because I for one know that it will ease some of the burdens that she has to carry 24/7. Do not allow Marzi to fade from your Memories! P.S. The Photo of Marzi that you see here was circa 2008 Xmas.” Annie did my makeup and applied fake tan. It's what I hope to be back to looking like me on the outside as well as inside.” Andrew Klein