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Howdy friends!
Some of you know me personally, and it's nice to meet you for those of you who don't!
If you've had the pleasure of spending a summer with me, you've probably noticed the black sleeve I wear 24/7 on my right leg. And as much as I wish it were covering up a sick tattoo sleeve, that's not the case
*psst... skip to the end for a TL;DR if you're short on time!*
In 2016 I was officially diagnosed with a rare condition called lymphedema (how doctors say "swelling of the lymphatic system").
What's a lymphatic system? Hold onto your hats, folks; here's a little biology lesson for ya!
When it's functioning correctly, our lymphatic system picks up everyday toxins, pollutants, viruses, and bacteria that have leaked into our tissues and empties them safely into our thoracic ducts.
It's the unsung hero that we really only notice when we're sick - when your doctor starts poking around your neck and groin to see if you have an infection, they're checking your lymph nodes! Or when you're face is a little puffy from a hangover (Gua Sha is a form of lymphatic drainage!)
When the lymphatic system is not formed well or, in my case, damaged by violent & deadly viral infections, swelling and an increased risk of (reocurring) fatal infections can occur.
In my unique case, my right leg's lymphatic vessels and nodes were completely damaged by a repeated fatal infection that required hospitalization 4 times over 2 years. Because my lymphatic system doesn't work properly, my leg swells uncontrollably without proper day and night-time compression garments, physical therapy, pneumatic pumps, and bandaging to reduce volume.
The added pressure on my vessels from the swelling also makes it even harder for my already damaged system work properly, increasing my risk of infection that much more, and interfering with my circulation.
But some fluid is stubborn, and it hardens over time, causing permanent & noticeable size difference, damaging healthy tissue, increased pressure on my blood & lymphatic vessels, pain, and - let's be honest - my overall quality of life.
After 4 years of fighting for health insurance, and another 2 spent on a waiting list - I'm finally next in line for an innovative surgery that will:
- remove calcified (hardened) toxins and lymphatic fluid from my right leg
- reduce volume and restore my mobility and strength
- decrease my risk of fatal and costly infections
- improve the function of my damaged lymphatic system
Because lymphedema is only just getting the attention it deserves (thank you Kathy Bates!) Medical Insurance companies often deny coverage for procedures, garments, and devices necessary to keep people with rare disorders and diseases healthy.
I've been managing my condition out-of-pocket for 6 years now, and finally received a call that Dr. Granzow has an opening to see me, to start my journey for a better quality of life without worry of infection around every corner.
Tavel costs, lodging, food, and the consultation fees aren't covered under my employer's assistance plans or my insurance, so that's where you come in!
I checked my savings account + loan options, and I'm just $1,500 away from receiving the help I've needed for so long now.
TL;DR, as promised:
I have a disease that requires costly surgery and procedures, and it isn't covered by my insurance. Every dollar helps!
Thank you for taking the time to learn a little bit more about me and my condition
For more information on the surgery I'm eligible for and some helpful resources about Lymphedema and our Lymphatic system, check out these links below!