A headache isn’t always just a headache-#teamRori
Donation protected
A headache isn’t always just a headache.
“Rori needs a head CT!” Erin urged with worry and concern in her eyes at a dance team fundraiser. Erin had her youngest daughter, Hailey, step in for Rori at the dance school’s team fundraiser that morning, because Rori was home with an agonizing headache and vomiting. Rori is a 6th grade gem who dances with all of her heart in jazz, lyrical, ballet, hiphop and tap on a competitive dance team. She lights up a room with her laughter and humor, and has spunk that shines for miles. But her family came to learn, a headache isn’t always just a headache.
On April 7th, Rori went from the Seattle Children’s Urgent Care directly to the Emergency Room, to be admitted to the Pediatric Intensive Care Unit for neurosurgery on what revealed to be Grade 1 juvenile pilocytic astrocytoma (PA)…a brain tumor the size of a tennis ball. This 12 year old went from dancing on stage, breathing delight and awe into spectators hearts; to having every breath she takes monitored under astute watch of medical professionals. In the hands of a great neurosurgeon who piloted Tumor Paint, they were able to successfully remove all of thetumor on April 9th. But that was just the beginning of the storm surge. Rori woke to find effects with subsequent posterior fossasyndrome. She’s still an inpatient at Seattle Children’s Hospital requiring a multitude of care in all aspects of functioning. Herdaily interactions with her tribe of dance friends have now been replaced by a tribe of varying Doctors, Nurses, Specialists and Therapists. Her rehearsal is now not to master a dance routine, but to master regaining the Rori everyone loves and adores. Rori’s Mother said it best, “if one judges the brilliance of a rainbow by the tenacity of the storm, the rainbow that is coming for my girl is going to be spectacular.” Please help support Roriand the medical expenses that her family has to endure. Life isn’t about waiting for the storm to pass…it’s learning to dance in the rain. Go Rori!...5, 6, 7, 8…
“Rori needs a head CT!” Erin urged with worry and concern in her eyes at a dance team fundraiser. Erin had her youngest daughter, Hailey, step in for Rori at the dance school’s team fundraiser that morning, because Rori was home with an agonizing headache and vomiting. Rori is a 6th grade gem who dances with all of her heart in jazz, lyrical, ballet, hiphop and tap on a competitive dance team. She lights up a room with her laughter and humor, and has spunk that shines for miles. But her family came to learn, a headache isn’t always just a headache.
On April 7th, Rori went from the Seattle Children’s Urgent Care directly to the Emergency Room, to be admitted to the Pediatric Intensive Care Unit for neurosurgery on what revealed to be Grade 1 juvenile pilocytic astrocytoma (PA)…a brain tumor the size of a tennis ball. This 12 year old went from dancing on stage, breathing delight and awe into spectators hearts; to having every breath she takes monitored under astute watch of medical professionals. In the hands of a great neurosurgeon who piloted Tumor Paint, they were able to successfully remove all of thetumor on April 9th. But that was just the beginning of the storm surge. Rori woke to find effects with subsequent posterior fossasyndrome. She’s still an inpatient at Seattle Children’s Hospital requiring a multitude of care in all aspects of functioning. Herdaily interactions with her tribe of dance friends have now been replaced by a tribe of varying Doctors, Nurses, Specialists and Therapists. Her rehearsal is now not to master a dance routine, but to master regaining the Rori everyone loves and adores. Rori’s Mother said it best, “if one judges the brilliance of a rainbow by the tenacity of the storm, the rainbow that is coming for my girl is going to be spectacular.” Please help support Roriand the medical expenses that her family has to endure. Life isn’t about waiting for the storm to pass…it’s learning to dance in the rain. Go Rori!...5, 6, 7, 8…
Organizer and beneficiary
Nikki Levy
Organizer
Puyallup, WA
Erin Russell
Beneficiary