Hello,

My name is Beth and I am the mum of Harley. He was born with a rare condition called mobieus syndrome, which has resulted in Harley needing a tracheostomy, gastrostomy, ventilation and a permanent wheelchair as he will never walk.

Over the years Harley has had dozens of hospital admissions and has flourished at his SEND school in Wakefield under physiotherapy through equipment. He is under various medical experts and departments and requires 1-1 round the clock care. He is a happy little boy who loves Paw Patrol, music, bright lights and most things a little boy of age 5 is into.

As Harley is getting older and heavier he requires more equipment & space, and unfortunately we cannot provide him with this at the moment. Wakefield Adaptations have reviewed our home and a ground level extension has been approved by the planning permission team. We as a family are over the moon with this and are looking forward to Harley finally having the space and equipment he needs. This will include a wet room with stretcher board and a single bedroom with a hoist for Harley. The DFG (disabled facilities grant) that the government provide covers up to £30,000 for the adaptations, but we have had quotes from companies stating this can cost up to £45/50,000. We have our own savings of around £3,500 but of course nowhere near the extra amount we would need to provide Harley with the extension he desperately needs.

Please consider donating anything you possibly can whether that be 50p or £5, we know how hard times are with the cost of living crisis and we would be eternally grateful for absolutely anything.

Thank you for taking the time to read our story.