Lizzie said recently "Due to the gene mutation and the rarity of Freyjas cancer all we have managed to do is arrest the cancer for now which is still amazing...the Cancer is still there but not active. It allows her to go back to school for 90 minutes each day but she is still on Oxygen at night and requires high doses of supplemental support with a special diet and anti cancer treatments to stop cancer advancing. She has endured and continues to suffer side effects that need their own treatments and support that aren't covered. We don't qualify for NDIS, I rely on family, friends and the community for support and I'm so grateful". Lizzie says "Yes, I now get some support from government services but by the time I pay for everything each month I'm almost -$5,403. Sadly I've just told the girls we have to sell our home and I don't know where we will live. After much tears my girls are helping me to organise garage sales to sell everything we have, its heart breaking...these kids have given up everything. Cancer kills so much more, its not just the disease that destroys you....the impact is life long for everyone involved"
Who wouldn't do everything to save a child, especially your child.
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- Jill Hewat
- Catherine Labbate
- Sally Stewart
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