Funds for Trey Luchak’s Family and Memorial

My name is Vanessa and last summer my 22 year old nephew, Trey, was diagnosed with cancer. Not just any cancer but a rare form of a rare type of cancer called Clear cell sarcoma/ CCS. It affects mainly children and young adults ages 7-27 and there is no known cure at this time. 

About a year and a half ago Trey started developing a lump on the bottom of his foot. We thought nothing of it at first, but as time went on it started to cause him a discomfort. 

So we went to the Doctor. He first visited a podiatrist that advised him that nothing was wrong and it’ll go away on its own. We decided to get a second opinion and we were glad we did.  The doctor advised us it was indeed a tumor and he referred us to MD Anderson. He said they’d be best equipped to take it out because Trey is only 21 years old he did not suspect it was cancerous. 

So we waited on a referral. But, Every day tasks as small as putting on socks were becoming impossible for Trey the tumor had ballooned to about the size of a golf ball and he could no longer walk. We decided to go straight to MD Anderson ER with the plan: get the tumor removed.  He’s too young to have cancer! 

We were shocked when MDA decided to keep Trey for almost a week running tests. After those first few days in the hospital, his doctors were able to nail down a diagnosis. Clear cell sarcoma (CCS) is a rare soft tissue tumor It accounts for 1% of all soft tissue sarcomas and usually involves the tendons and aponeuroses in the distal ends of the extremities. 

The foot and the ankle are the most common primary sites. It is a grueling and painful cancer. The life expectancy is around 5-10 years WITH a working treatment. CCS can be overcome but it always comes back and not many live after the much worse second time. 

There are no known cures but by the grace of god we came across sarascure.org while searching for help online. Sara’s cure’s director, Lennie Woods, lead us towards a trial study in California. We are trying to extend our time with Trey for as long as possible. We’re beyond blessed to have been accepted into the Apollo 613 trial at City of Hope in California.

With Dad not working and at home caring for their 2 young boys ages 5 and 2 plus taking care of Treys everyday needs at his side. Mom works full time to keep insurance for their son, it has hurt the Family financially. Luckily Mom has great insurance and its accepted out of state with the district she teaches at but travel expenses are on the rise for them as Trey requires special accommodations the entire trip. He cannot walk. 

We know times are rough for everyone but we ask if you cannot donate that you please just pray for Trey! #prayfortrey if you can donate know that it will go directly to flights, hotels, rental cars, and food for their stay every month in California. 

We keep hope alive that Trey WILL be the CURE for all those who suffer from this aggressive cancer worldwide! We pray this study holds the answer and the key! Please help us get there! #wayfortrey 

We just need a way! 

Thank you all and we will update you all on this journey as we go through it with Trey! 

God bless!! 

#wayfortrey #prayfortrey #cancersucks #cancer #rarecancer #htown

contact:[email redacted] if you have any questions