is a 10 yr old boy, born in Providence/RI in 2018. After many years trying to raise funding for his born marrow transplant, unsuccessful, we moved to Memphis/TN last Feb 2019 aiming to have Caesar bone marrow transplant at St Jude, which policy (especially in case of patient with sickle cell; not the case for Cancer) the family/patient must be living there and no far than 100 miles from the hospital. We are so blessed to reach here -- a journey that took several years and cost huge debts as a result of accumulated bills. Thanks, great friend, Leo/Debbie, we bought an old house that didn't have even central AC but it was enough to make this moving to Memphis possible. Though St Jude doesn't charge the family for the treatments, there is another part really essential called post-transplant
: having a place free of germs, a friendly environment healthwise speaking because the transplanted patient takes special medication to decrease his/her defense/immunological system, to avoid the transplant rejection. It's a period in which the risk for the person gets an infection is really very high. It one of the top risks of this medical procedure and sometimes double sad because the transplant center does the best but the family can't (doesn't have the financial means) to keep up with the needs when the patient goes home. Translating the whole thing: the higher the efforts are, the higher is the chance of a full success story. But it where money talks, and we do not have it. Then, your help can make a difference. It without mention that great part of Caesar is doing quite well (stable, with happiness unshakable) giving what he underwent so far is due to an unstopped effort ranging from natural/alternative medical support that is very costly. As a result, even cold he (and his sisters, Maria-Anita and Helen) seldom have it. Caesar featured on the National Geographic WHEN THE TRANSPLANT WILL OCCUR
? We don't know yet. It's the thing that is not on our hands, though we'd love to have it already. However, we moved to here aiming to have it done in this Summer. We'll push to get it done in this year anyway. Otherwise, we can't stand in this path for any longer. It's too much stress/sadness with this matter so far: me, Lucas, his father, had a heart attach lest (2018) and a stroke in Augst 2019. On the other hand, Caesar's health situation is stable. He pretty much got done the phase so-called pre-transplant whereALL the exams/evaluations possible are already made: brain and vital organ images, vision/audition, etc, etc plus FULL analysis of this whole thing. In a meanwhile, Caesar keeps asking EVERYDAY when he will be free of this crazy anemia -- being 'normal' like his sister, Helen -- that he was born with. We do hope that by the end of the current year this whole thing is over. WHERE WE ARE
? Memphis/TN. St Jude is providing physical therapy (3x a week) for Caesar's legs gets stronger; he keeps under the monthly blood transfusion, a medical approach aimed to mitigate the possibility of new strokes while the transplant is not done. Again, this bone marrow transplant has around 95% chance of cure for this anemia. A GOOD PLACE
= St Jude. The nurses, who do the hard job are (as far as we have seen) are outstanding! And the hospital policy sounds beautiful too!!! I also think that as it's a 'research' hospital, they are open mind looking for the best throughout every single procedure and steps... a simple -- but crucial example -- for you have a clue: the way they get access to the veins (Caesar has a very tiny ones) is quite very 'customized' and unparallel carefully... Also, the workers are happy. It clearly sounds that St Jude treats them well so that they treat the patients with more love! NICE AND LOVELY RETURN
: Now from on, for each donation, you'd have a music track of Caesar's 'Heaven's Gates' album that he started working back last year. He has two tracks available at his site: <www.caesarviolin.com
>. Your e-mail address is needed for we send the music track. We hope that he could finish the recording of the whole album before the transplant, though there are two things completely independent, not related.
Like any other child, Caesar is a very special boy and since very little.:
Although he was born with this bad anemia --sickle cell -- we believe that Education is the best way to pave new opportunities and open new doors so that IT helps with many ways to move ahead. Therefore, at the very early, we started this process to support his natural abilities. So, he started taking violin lesson at 2 with incredible skill and joy; the Kumon (a Math & Reading) program. By 4, he was reading fluently. At 5 he was doing the third-grade math. Since he was a toddler he started learning different languages such as Greek, Chinese, Russian, German, Hebrew. At 5 he earned the black belt (Little Dragon’s) in Karate. Then, the anemia which blood disorder is more than tricky starts to be more severe bringing strokes to him = nightmares. The 3rd stroke (2014), and the last one literally almost killed him. He had to relearn pretty much everything. As you can see his store here well documented by the National Geographic, depicting a fairly summary of he has undergone.
Unbelievable, but Caesar is the happiest person you can imagine. I have no idea where such positivity comes from. Certainly, it comes from his inner which the main source is God. (KEEP READING BELOW)HERE IS CAESAR WITH HIS SISTER (Maria-Anita and Helen) outside of St Jude (June 26, 2019) while the blood for his transplant was up to come
NOW, WE FINALLY moved to Memphis/TN (below photo) in order of he has his bone marrow transplant. Here is his 1st blood transfusion at St Jude. The transplant will be likely to happen in the coming Summer. In the months ahead, all the exams need will be done as part of the actual pre-transplant evaluation. Caesar keeps smiling with his happiness, what lovely contagious us all
Below: February 208: were packing to move from Winston-Salem/NC to Memphis/TV
Although the previous two o strokes did not cause much neurological damage, the third one (June 2014) left him temporarily paralyzed and unable to walk by himself for 6 months. Basically, he got to a stage where even his eyes were not moving. As a result, he had to relearn everything from the scratch: the violin and Math parts, he greatly recovered,
though his limbs and fingers (mainly on the right hand) are still weeks); the languages not too much --with slight exception for Hebrew and Russian that he got to manage again, and the others got in 'slow motion'. But hope is everything!! National Geographic: https://bit.ly/
2Gyk1rA did a documentary on him. More recently, Make-A-Wish Foundation granted him with a wonderful wish to play for his idol, the icon, and great violinist, Mr. Itzhak Perlman that happened in Richmond (VA) - on Sep 2016. Without hope-faith-love, we certainly would be that far.
(Read more below)
Although most sickle cell patients receive blood transfusions after strokes to prevent another crisis, Caesar’s parents knew that more blood transfusions would only ease the symptoms, not cure them. The only and best outcome if go through a bone marrow transplant that can (~95%)
cure this anemia. Then, we decided the best option was to work in such a direction by having a sibling. It was very costly. And we got our lovely baby Helen, she by far much more than Caesar's donor, she is the heart of our house.
He is currently under chronic/monthly blood transfusion. Yes, it doesn't cure anything. It's mitigated (decreases) the changes of new strokes, on the other hand, it being a number of side effects among them organ damage, iron overloading, multiple antibodies, etc.THANKS TO THE SUPPORTERS LIKE YOU
, Caesar's vital organs are good, he doesn't have many antibodies, his iron overloading is NOT skying hocking as it normally does after a long period of blood transfusions. Many thanks for his previous lovely Hematologist: Dr. Daniel McMahom, from NC, with who we worked with a trust relationship for about 5 years seeing him every month for a blood transfusion. As a result, Caesar's iron was stable throughout this period: no organ damages. In addition, we learned how to control/take it down and totally naturally. But all these are very costly financially, emotionally....June last (2018) had a heart attack: I was dead for 30 min and by God miracles, I brought me back. In the end, it's the parents' job number one to DEVOTE to the children. That's the core of my family. Yes, it's a complicated business, but it's a kind of thing that you have to have patience, faith, hope to work hard and leave ALL on God's hand to make the final decision.
After all this: we decided to go through in vitro fertilization (IVF) in order to ensure that we do not pass along the sickle cell gene to another child, as well as to find a 100% bone marrow match for Caesar. Then, we were able to have one healthy and beautiful child (baby Helen
, born in December 2014), who is much more than at it's called "a savior' life, our baby Helen became the central heart of our family and Caesar's best friend aside of his other sister, Maria-Anita. Basically, her Her umbilical cord blood -- that has the perfect compatible cells -- was collected and stored for the transplant.