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Yemaya Marie’s Funeral & Celebration of Life

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January 3, 2020 — October 25, 2022

Everything about Yemaya was perfect, from her head full of hair, her bright smile & even her sense of style. Yemaya’s arrival made her siblings lives complete; they constantly doted over her, showered her with love, and shared her for their loved ones to adore.

Yemaya was diagnosed with a number of things while in the womb. Spina bifida, hydrocephalus, Myelomeningocele, Tracheomalacia, Chiari malformation type Il, just to name a few. Her mom was told that she wouldn’t live outside of the womb. Not only did she do that, but she has met so many milestones and proved the doctors wrong so many times. She almost made 3 years old.

While on this Earth, she became known best for being the best dressed baby girl in the NICU. She loved to get dressed up. It made her feel good while awaiting to leave the NICU. The nurses and everyone from all around couldn’t wait to see what she had on during her time there. She became known as the “NICU Fashionista”.

After being released, she experienced so many challenges. She went through numerous therapies, surgeries, seizures, and even cardiac arrests on multiple occasions. Through it all, she kept a smile on her face. She even broke her leg twice in the same place & did nothing but smile. It was amazing to see her strength.

Since she had such a short life span given her medical condition and history, life insurance was a no brainer. Her family searched high and low for life insurance but they all said the same thing: she was not eligible being that she has a pre-existing medical condition. It wasn’t thought that her life would come to an end so soon.

During her last hospitalization which began August 16, 2022, she went in for a bladder inflection as she has before. Since she was catheterized, she was prone to these bladder infections but this time it was septic. It was assumed that she would recover & get to come home as she has before. Unfortunately, this time that wasn’t the case. Little Miss Maya chose to recover in her own way and decided to departed Earth’s side on October 25, 2022. Even though she never got to walk, she now gets to fly.

These funds will be used to send her off in a way a princess should. Any funds left over will be donated to the Spina Bifida Association. We appreciate all the donations and those who aren’t able to give we still appreciate your love, support, thoughts & prayers during this difficult time.
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    Organizer

    Alexis Johnson
    Organizer
    Charleston, SC

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