Walter J. Bastian, was diagnosed with Barth Syndrome in February of 2018. Barth Syndrome is a rare disorder only affecting around 200 people in the world (Click on the link to learn more). Since February, Wally has been to dozens of doctors appointments all over Illinois. He has been in and out of the hospital for various illnesses.
On January 7th, Walter was transported to OSF Hospital via Ambulance, because he had stopped breathing. He then was admitted to OSF Children’s Hospital in the Pediatric ICU. Unfortunately Wally went into septic shock causing his organs to go into failure. He was intubated, using a ventilator, and receiving a multitude of medications within a few hours. Doctors believe that this was all caused by a small virus, and unfortunately because of Barth’s, his little body was not able to fight off said virus. Wally was transported via OSF life flight to Ann & Robert H. Lurie Children’s Hospital of Chicago as of today, January 16th.
Now, we’re asking for not only your prayers and support, but also to help Kelsey and AJ (Wally’s parents) financially during this very scary time. Wally is stable, but we do not know how long he will be in the hospital. Also, because Barth’s has affected his heart so much, there may be a possibility of a heart transplant. This gofundme will go directly to Wally’s parents to help pay for medical bills, utility and car, and also traveling.
We are so thankful for all of the support we have received, and are blessed to have such a caring community. Please help us spread the word about Wally for prayer and also for this gofundme. Please consider donating, not only for Wally, but for Kelsey and AJ’s peace of mind. No parent should have to watch their child suffer, and Kelsey and AJ have been very brave so far. Please help them take a little stress off of their lives so they can save all of their energy for Wally.
Fear not, for I am with you; be not dismayed, for I am your God; I will strengthen you, I will help you, I will uphold you with my righteous right hand.
If you would like to donate privately, you can contact Shananne Buehler, Kelsey’s mom through email here. Thank you for all of support! #WonderfullWally #LetsKickBarthsButt #KeepFighting #WallysWarriors
- Anne Contratto
- Nicole Wright
- Ginger Ghent Lummis
- Jasmin Singleton
- Tiffiany Shore
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