Wolfram Syndrome Awareness

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Megan was diagnosed in January 2014 with a rare genetic disorder called Wolfram Syndrome. Our goal is now to raise awareness of this disorder and more importantly, funding for treatment.

Megan is entering a clinical trial for a potential drug to slow the progression of her Wolfram Syndrome.

We will be required to travel to St. Louis ten (10) times over the next 6 months to be a participant in the study.

We are fundraising to cover the travel costs. All funds received will be applied directly to these expenses. Any funds received above the travel costs will be donated directly to the Snow Foundation for research and any clinical trial needs.

  • Julia Maguire 
    • $50 
    • 18 mos
  • David & Holli Gibson 
    • $1,000 
    • 19 mos
  • Betsy Oudenhoven 
    • $100 
    • 22 mos
  • Mark and Julie Earnest 
    • $200 
    • 23 mos
  • Monique Potter 
    • $150 
    • 24 mos
See all


Susie Mackanos 
Grove City, OH
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