Hi my name is Delora I am Emersyn’s mom. As most know this year for us has brought us this little blessing, but along with her arrival came so many uncertainties and unknowns since even before she was born. We have spent countless hours in Dr appointments, evaluations therapy’s, being poked, imaged, scanned and swabbed. I had to cut back my hours at work and even had my own surgery which required me to stop working until healing was complete. This was the week I was scheduled to return to work, and even though it was minimal hours it was better than nothing. As of last Tuesday December 14th Emersyn has been in the hospital where she was considered “Failure to Thrive” and along with her rare genetic condition struggling to get nutrition needed to gain weight, grow. And strengthen her muscles. I have been with her since then away from our older 3 kids during the holiday season. Unfortunately Emersyn is struggling to adjust to her new G-tube and recovery from surgery has been anything but easy. Every time we think we are making progress we end up moving backwards further delaying her recovery and return home. It breaks my heart as we get closer and closer to Christmas Day that we more than likely will not be home by then. Her dad has exhausted all vacation/sick/personal time to care for me after my own surgery and to now be the main caregiver at home. The bills that have slowly started to pile are becoming more overwhelming on top of an already overwhelming situation. I never thought I would be the person to do this because I hate asking and accepting offers of help. Thank you to everyone that has helped, reached out and prayed for our little girl!