"Tremendous Trent"

My nephew Trent has had a long life at the age of five but has always had a smile on his face. He is a fighter and so glorious. His dad was injured in a work accident that has him unable to work. The majority of his body was burnt and Nikki suffers from back problems and unable to work. They both have to stay home to take care of Trent which has bills piling up. They don't have a proper handicap house for Trent. I would like to get some bills paid for them and possibly start looking for a forever comfortable home where Trent can have his own bedroom. The next paragraph is from Nikki (Mom)
"I think one of the hardest things is there is no name for what my son is dying from... His brain stem is shutting down his brain will shut down eventually but we have no name for it there is no awareness day no t-shirts no nothing for my son since it is so rare. I know I am complaining but I feel I have the right to vent. My son is dying I don't know when it could be, could be 10 years from nowand  it could be TOMARROW!  we don't know, his neurologist doesn't know. She said take him home make him as comfortable as you can. So that is what we will do we will love him and keep them happy and comfortable as long as we have him." I would like to add we will be needing donations for funeral expensses for Trent when he passes away.