Hi!My name is Olivia Kate James! I was born with a rare genetic skin disease called EB (epidermolysis bullosa) Simplex. My skin condition is very painful and has no cure! Layers of my skin peel away leaving me to have raw fresh skin that bleed. Any friction, and environment can also cause my skin to blister and bleed. I have to be bandaged everyday for the rest of my life to keep my skin. I can not use just any normal bandages I have to use very special bandages that will help my skin. I also have to have special clothes, shoes, and other items to help keep me from pain. I will have to have pain medicine to help make the pain go away for the rest of my life. My skin is very fragile and special that I have a nickname called Butterfly Baby. My mommy and daddy work really hard to make sure I am taken care of and try not to feel pain. My daddy is in California because he is active duty Coast Guard so I don't get to see him very much at all. With my condition my mommy will have to stay with me full time to take care of me. It's hard for mommy and daddy to be far apart but they are trying to get the best care for me. I have a wonderful family that I was born into that loves me for me! I have many friends that help support me and I thank you all for that!