ALS Patient Needs Your Help

Your help is urgently needed! Jon is a severely disabled man living north of Seattle. Jon has recently been clinically diagnosed with a Neuro-Muscular Disease being treated as ALS. He also has over a dozen other serious medical conditions including: an inherited Primary Immune Deficiency, Epilepsy, Chronic Demyelinating Polyneuropathy, Macular Degeneration, Severe Chronic Pain and multiple forms of Arthritis and Spinal Degeneration.

Jon’s medical situation is complex, and his needs & care are demanding. For many months he and his spouse, Alan, struggled against the very real possibility of homelessness because an outdated Washington State rule that prohibits spouses from being paid for the care that they provide, even when that care is full-time and other employment is impossible.

Because of this rule, the ability to continue providing care to Jon in a safe and stable home has become financially impossible. However, because of the continued progression of Jon’s Neuro-Muscular Disease, he was able to be recently admitted to a skilled nursing care facility.


While the specter of homelessness for Jon has receded, he still has many immediate needs that are not covered by Medicaid. These include adaptive speech technology & communications software, OTC medicines and supplies, and personal toiletries and clothing.

He also has a long-term need for a wheelchair-accessible vehicle to transport him to medical appointments. Another long-term goal that Jon and Alan have is to raise the money needed to once again allow Alan to provide care for Jon in a safe and loving disabled-accessible home.

All contributions will be used to help meet Jon’s much needed medical equipment and supplies and other needs. A contribution in any amount is greatly appreciated! As importantly, the awareness that he has the support and encouragement of a caring community behind him is invaluable to Jon as he struggles to retain his residual health.

Despite his admittance into skilled nursing care, Jon and Alan are still fighting to change the devastating state rule so that other families will not be forced to battle against destitution and homelessness while struggling to care for a loved one. To learn more about Jon’s story and his courageous fight to save his family, a website will soon be published and available at:  http://www.teamjon.org 

Also, please visit his companion Facebook page at:  www.facebook.com/TeamJon.org



Please share Jon’s story with your community of family and friends. On behalf of Jon, Alan and all of those who love and support them, thank you for your care, support and prayers. Thank you as well for your help in sharing the story of Jon’s courageous journey!

Donations

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  • Karen Leitner 
    • $50 
    • 32 mos
  • Joyce Howe 
    • $100 
    • 48 mos
  • Daryl Walter 
    • $200 
    • 52 mos
  • Melanie Colon 
    • $100 
    • 55 mos
  • Anonymous 
    • $100 (Offline)
    • 57 mos
See all

Organizer

Alan Gossett 
Organizer
Bothell, WA
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