Baby Teagan's~ CDH Fight for Life
Donation protected
ALONE we can do so LITTLE~
TOGETHER we can do SO MUCH!!
**This GoFundMe page has been set up by Family & Friends, wanting to show & share our LOVE, SUPPORT & HELP for Cody & Shauna and their precious unborn baby girl Teagan Renee, due to arrive May 2016!
Shauna & Cody's Story:
Having children has always been a dream for both Cody and I, so when we heard the words "Congratulations your blood test is positive...You are Pregnant" those words meant the world to us! It has been the BEST news anyone could have told us! Then we found out through new DNA blood testing, that our precious little baby is a GIRL...were over the moon happy and so excited!!
On January 12, 2016, at my scheduled 19 week anatomy ultrasound, expecting it to be a joyful OB appointment with counting fingers and toes and getting every reassurance that her baby was growing and looking just fine, instead it became the day everything changed! Instead we were given devastating news, news that turned our world upside down! News that our baby girl has a life threatening Birth Defect called Congenital Diaphragmatic Hernia (CDH). Her stomach, intestines, bowel and possibly a little tip of her liver are in her chest cavity. The words "abort" and "terminate" were recommended to us, not once by twice!!! It all felt like a very cruel and awful nightmare...with NO HOPE!!! Our perfect pregnancy was no more our reality. We would NOT give up on our baby girl. Moms don't give up. Dads don't give up. We would not give up so we, along with our extended families took to the web to learn as much current information as we could about CDH. We also reach out to other CDH families that we found through social media. It was comforting to talk with others that understood our devastation and fear!
CDH occurs in 1 in every 2,500 births with 1,600 cases being in the U.S. each year. The cause of it is unknown. CDH occurs when the diaphragm fails to form or close all the way allowing abdominal organs into the chest cavity. Because of this, the heart is pushed to the right side of the chest and prevents the lungs from developing normally, resulting in pulmonary hypoplasia (or underdeveloped lungs). This can cause reduced blood flow to the lungs and pulmonary hypertention (high blood pressure in the pulmonary circulation), as well as feeding delays, reflux problems and many other problems. Every CDH baby has a different chance of survival. Survival rate is 50/50 but because our baby will be cared for by a very skilled team of doctors and a specialized hospital like Seattle Children's her survival rate goes up to 75-80%. We have HOPE & FAITH that our baby girl will be strong and fight hard, healing and thriving aboundantly...as to come home to us!
Due to my high risk pregnancy, I will be delivering at the University of Washington Medical Center (UWMC) with the help of my wonderful team of high risk OB docs (Dr. Shani Delaney), sometime in May! Directly after I deliver Teagan, she will be stabilized and then transported via ambulance to Seattle Children's Hospital (SCH). She will need the help of a breathing tube, feeding tube, IV's and many monitors to watch her heart & lungs, also her breathing, and oxygen saturation plus much, much more!
Teagan will undergo surgery within hours or possibly days after birth, depending when she is stable enough to undergo 3+ hours of surgery, to move the organs out of her chest cavity and back down in the right spot in her diaphragm, repair and close the area of her hernia. At our last appointment in Seattle, we met with Dr. Patrick Jarvid, an attending surgeon in the Division of Pediatric General and Thoracic Surgery at SCH.
Dr.Jarvid discussed and explained Teagan's CDH with us, with such grace, confidence and compassion. We left feeling so hopeful and thankful that we have such skilled doctors just hours away from our home town!
We were also given lots of other important information on housing and what to expect while Teagan is in the NICU. Fortunately, there is a Ronald McDonald House (RMH) close to SCH- where Teagan will be. Our hope is
to get housing while Teagan is in SCH healing.
We are asking everyone to please keep our little family, especially our baby girl in your thoughts and prayers. We are so fortunate to have such great support and love from family and friends. We don't know how long she will stay in the hospital but we are staying positive and can't wait for the day we get to take our little Girl home. Shauna & Cody
Here is where WE CAN HELP:
Unfortunately, there are many added expenses that go along with caring for a CDH baby like Teagan. On top of medical expenses- copays, high deductables, there is the cost of traveling to and from Seattle, food expenses, lodging (RMH is $30 a night) and with Cody will be the sole income at this time, he will be taking an undetermined amount of time off work to be in Seattle with his girls.
We are reaching out to YOU, Family and Friends and those they have not yet met! Shauna, Cody & Teagan's wonderful supportive VILLAGE, asking for LOVE, PRAYERS, and HELP! If you are unable to donate to Teagan's CDH Fight for Life, then PLEASE Keep Teagan in your thoughts and prayers....that would mean the world to Shauna & Cody!
THANK YOU!!!
For more information on CDH:
http://www.seattlechildrens.org/medical-conditions/digestive-gastrointestinal-conditions/congenital-diaphragmatic-hernia/
http://www.cherubs-cdh.org/
http://cdhsupport.blogspot.com/
TOGETHER we can do SO MUCH!!
**This GoFundMe page has been set up by Family & Friends, wanting to show & share our LOVE, SUPPORT & HELP for Cody & Shauna and their precious unborn baby girl Teagan Renee, due to arrive May 2016!
Shauna & Cody's Story:
Having children has always been a dream for both Cody and I, so when we heard the words "Congratulations your blood test is positive...You are Pregnant" those words meant the world to us! It has been the BEST news anyone could have told us! Then we found out through new DNA blood testing, that our precious little baby is a GIRL...were over the moon happy and so excited!!
On January 12, 2016, at my scheduled 19 week anatomy ultrasound, expecting it to be a joyful OB appointment with counting fingers and toes and getting every reassurance that her baby was growing and looking just fine, instead it became the day everything changed! Instead we were given devastating news, news that turned our world upside down! News that our baby girl has a life threatening Birth Defect called Congenital Diaphragmatic Hernia (CDH). Her stomach, intestines, bowel and possibly a little tip of her liver are in her chest cavity. The words "abort" and "terminate" were recommended to us, not once by twice!!! It all felt like a very cruel and awful nightmare...with NO HOPE!!! Our perfect pregnancy was no more our reality. We would NOT give up on our baby girl. Moms don't give up. Dads don't give up. We would not give up so we, along with our extended families took to the web to learn as much current information as we could about CDH. We also reach out to other CDH families that we found through social media. It was comforting to talk with others that understood our devastation and fear!
CDH occurs in 1 in every 2,500 births with 1,600 cases being in the U.S. each year. The cause of it is unknown. CDH occurs when the diaphragm fails to form or close all the way allowing abdominal organs into the chest cavity. Because of this, the heart is pushed to the right side of the chest and prevents the lungs from developing normally, resulting in pulmonary hypoplasia (or underdeveloped lungs). This can cause reduced blood flow to the lungs and pulmonary hypertention (high blood pressure in the pulmonary circulation), as well as feeding delays, reflux problems and many other problems. Every CDH baby has a different chance of survival. Survival rate is 50/50 but because our baby will be cared for by a very skilled team of doctors and a specialized hospital like Seattle Children's her survival rate goes up to 75-80%. We have HOPE & FAITH that our baby girl will be strong and fight hard, healing and thriving aboundantly...as to come home to us!
Due to my high risk pregnancy, I will be delivering at the University of Washington Medical Center (UWMC) with the help of my wonderful team of high risk OB docs (Dr. Shani Delaney), sometime in May! Directly after I deliver Teagan, she will be stabilized and then transported via ambulance to Seattle Children's Hospital (SCH). She will need the help of a breathing tube, feeding tube, IV's and many monitors to watch her heart & lungs, also her breathing, and oxygen saturation plus much, much more!
Teagan will undergo surgery within hours or possibly days after birth, depending when she is stable enough to undergo 3+ hours of surgery, to move the organs out of her chest cavity and back down in the right spot in her diaphragm, repair and close the area of her hernia. At our last appointment in Seattle, we met with Dr. Patrick Jarvid, an attending surgeon in the Division of Pediatric General and Thoracic Surgery at SCH.
Dr.Jarvid discussed and explained Teagan's CDH with us, with such grace, confidence and compassion. We left feeling so hopeful and thankful that we have such skilled doctors just hours away from our home town!
We were also given lots of other important information on housing and what to expect while Teagan is in the NICU. Fortunately, there is a Ronald McDonald House (RMH) close to SCH- where Teagan will be. Our hope is
to get housing while Teagan is in SCH healing.
We are asking everyone to please keep our little family, especially our baby girl in your thoughts and prayers. We are so fortunate to have such great support and love from family and friends. We don't know how long she will stay in the hospital but we are staying positive and can't wait for the day we get to take our little Girl home. Shauna & Cody
Here is where WE CAN HELP:
Unfortunately, there are many added expenses that go along with caring for a CDH baby like Teagan. On top of medical expenses- copays, high deductables, there is the cost of traveling to and from Seattle, food expenses, lodging (RMH is $30 a night) and with Cody will be the sole income at this time, he will be taking an undetermined amount of time off work to be in Seattle with his girls.
We are reaching out to YOU, Family and Friends and those they have not yet met! Shauna, Cody & Teagan's wonderful supportive VILLAGE, asking for LOVE, PRAYERS, and HELP! If you are unable to donate to Teagan's CDH Fight for Life, then PLEASE Keep Teagan in your thoughts and prayers....that would mean the world to Shauna & Cody!
THANK YOU!!!
For more information on CDH:
http://www.seattlechildrens.org/medical-conditions/digestive-gastrointestinal-conditions/congenital-diaphragmatic-hernia/
http://www.cherubs-cdh.org/
http://cdhsupport.blogspot.com/
Organizer and beneficiary
Denise Cox Flanagan
Organizer
Bellingham, WA
Cody & Shauna Green
Beneficiary