Below are just a sampling of bills I have recieved over the last 17months! (Just the bills here total roughly $50,000)
(Pics 1-2 are the amount of prescriptions I have to fill each month, and the amount of pills I take each day, Pics 3-4 the large bottom pics are my friend Drippy McBeeps(my nickname for my IV pump), I had to be in the hospital for my birthday and he was nice enough to wish me Happy Birthday! I am an incredibly tough stick when it comes to IV access and Pics 5-6 are to show that, and just as an FYI an IV on the inside of your wrist hurts like a b*tch!!! avoid getting it there at all costs!)
While the physical toll is taxing, the emotional toll is just as great, if not more b/c I have had to put off so much of my life and have been unable to do so many things that I want to do. It kills me that I am unable to work, working is a huge part of my identity, I have held a job since I was 16, and up until this past year, the longest I have gone without working is a month, but because of the constant pain, nausea, and frequent hospital stays, I have not been able to maintain a job or career, and my quality of life is greatly diminished. The thing that breaks my heart the most, is that I can't fullfill my dream of having kids( I have to wait until I am off all of my meds, especiallyl the pain meds until I can even think about having them). All of my life I have wanted to have children, but the timing was never right, I always thought I would have time, and now my biggest fear is that I won't get better in time and I will miss that chance.
This leads me to where I am now… I’m down to my last 2 options, either to have an ERCP or to have a surgery called a Total Pancreatcomy with Auto Islet Cell Transplant or TP/IAT for short. This is so specialized; it is only done in a few places in the US, and is at least a year long process. While there is NO CURE for my disease these options are the closest thing to one and will allow me to live a LONG normal life.
These options WILL SAVE MY LIFE!
I have a Dr.’s appointment coming up at the end of Sept. to discuss the options, but I won’t be able to choose either option, if I can’t raise the money to help cover the costs. Which is where you come in, I need the help of kind and generous people to be able to get better and get back to my life. There are so many things I want to do with my life and sadly everything is on hold until I can get my CP resolved. So I created this fund is to help pay for my upcoming treatments, numerous monthly medications, and my insurmountable medical debt (40-50,000+)
All I want to do is get better and if you can help me get there I will be forever grateful. To pay your generosity forward, my plan is that once I am healthy and financially stable I will either volunteer and/or make a donation in your name to your favorite charity, so when donating please remember to leave the name of a charity your support.
Thank you in advance for all your help and know that there are no words that will be able to express how grateful I am for your generosity.
To learn more about Chronic Pancreatitis here are a few links from the National Pancreas Foundation and The Cleveland Clinic:
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- bilal ibrahim
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- Rebecca Woodlin (Bender)
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