Ryan William Scott was born on the 10th of March 2005.
Ryan suffers many life threatening and complex conditions, such as; Chromosome 15 Duplication, Epilepsy, Chronic Lung Disease & Cerebral Palsy, he no longer has the ability to walk or sit and is now permanently wheelchair/hospital bed bound. Ryan has lost muscle tone in his face, mouth and neck and can no longer use his mouth, meaning he cannot talk, eat or drink food and he cannot clear his own airways from secretions and must be suctioned (machine) every few hours, he is now P.E.G fed via a Pump & tube inserted in a hole just above his belly button and requires on going life support such as oxygen, peg pump, suction machine, oximeter and other equipment, to sustain and maintain enough health to stay living at home with his loving family.
Ryan needs to be transported regularly to medical appointments and to SDS (School) when he is well enough to attend.
The family will need a specially modified mobility vehicle that can transport Ryan, his wheelchair and his numerous pieces of life support equipment safely. The costs for such a vehicle could be upwards of $80’000 and we are asking the community, in its generous spirit, to help us raise at least $50’000 towards Ryan’s safety and to make his and his family’s life a little easier
Ryan currently travels in a modified baby’s car seat (which he is fast out growing). Any of Ryan’s family or carers must physically lift him out of his wheelchair, into this seat, as it cannot be done with a hoist (Just man power), (Ryan weighs over 32kg) and then break down his chair and large equipment and lift it into the boot of the car, (its a lot like playing tetris but with really heavy objects and a real person) this is proving to be both dangerous and time consuming, leaving the carer physically and sometimes emotionally exhausted at the beginning of the trip.
A mobility vehicle will help give Ryan quality of life and help give his family quality of his limited time.
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