Support Miguelito's Urgent Surgery

Dear Friends, Family and Community,

Meet Miguelito, the sweetest, Kindergartner with a smile that lights up the world. Miguel lives with Parkes-Weber Syndrome, an extremely rare congenital disease affecting fewer than 350 people worldwide. His journey is full of unique challenges, but his joyful spirit and big heart inspire everyone around him. We are reaching out for support Miguelito facing these challenges with best care possible.

In his short life, Miguel has endured 3 major surgeries, 2 vascular ablation and 1 orthopedic surgery. His last surgery was in April 2023, where he underwent an epiphysiodesis distal femur and proximal tibia. The goal of the surgery was to cut out the growth plates in his left knee hoping to give his right leg a chance to catch up, as well as relieve some of the pain the imbalance was causing him.

In mid-October, after seeing his doctors at Nemours Children’s Hospital in Orlando Florida, his family received results that were not expected. X-rays showed limb length discrepancy, carus on the left, and a mild varus deformity developing, along with a hernia and hydrocele. Due to these results, an urgent fourth surgery is required by the end of November. The guided growth plates need to be removed to prevent permanent growth arrest and deformity.

On December 16, 2024, Miguel will undergo 4 procedures at once, orthopedic, urologist, general surgery, and vascular surgery. This surgery wasn’t expected to happen to soon, and his recovery will be a slow, careful process, requiring dedicated care and plenty of time for him to heal fully.

Many of these rare disorders require treatments and tests not fully covered by insurance. This puts a serious financial burden on his parents. We are asking for any help to alleviate his family’s financial concerns so they instead can concentrate on the medical care that Miguel needs in order to fight the deterioration of his leg and continued monitoring of his disease.

Miguelito and his family need the support of our community both in prayer and financially. Help make a difference by donating and spreading the word. If you can’t donate at this time, please share this link.

No contribution is too small, and no prayer goes unheard. Let’s tell the world about Parkes Weber Syndrome.

Thank you for your continued prayers, support, and love during this challenging time. Together, we can show Miguel and his family that they are not alone in this fight.