Fostering Josiah’s Life: The Fight for Life Saving Care ❤️
Our son, Josiah, is fighting for his life against a rare and life-threatening vascular disease: Vein of Galen Malformation (VOGM)
a rare, life-threatening vascular disease where blood vessels in the brain fail to develop properly
This condition has already forced him through:
•FIVE Major Surgeries
• HEART FAILURE At 3 Months Old!
•Hydrocephalus At 1 Years Old!
•UNTREATED SEIZURES & EPILEPSY
•Untreated JUGULR Vein Narrowing for 6 months That Almost Killed Josiah In May 2026..
& a MASSIVE terrifying neurological decline since birth❤️
ALL OF THE ABOVE ⬆️
could have been COMPLETELY AVOIDED if properly treated.
A Breakthrough In Care
After 2 Years of being told to "wait and see" by teams in New Mexico, Texas, and Colorado, we finally had a life-changing meeting with Boston Children’s Hospital and Dr. Orbach on March 10th…
They Have Decided To Take On Josiah As A Patient!
One of the best hospitals in the world for Josiah’s diagnosis, BUT we need to make sure we can actually keep getting him to these appointments..
Our Son is being failed. Our family is being failed. And we are being forced into a system that’s not just failing Josiah, but it’s killing him
How Your Donations Create a Lifeline: ❤️
Our main goal is to now RELOCATE Josiah, his brother, and their mom From Albuquerque, New Mexico, to Boston, Massachusetts for Life-Saving Care on May 16, 2026 ❤️
•A Safe Home in Boston
Securing stable housing near Boston Children’s Hospital is our top priority to provide Josiah and Nikoli with a sterile, safe environment until Josiah’s life is no longer in danger of being managed by local doctors in our home state, & the care coordinators meant to mend this gap in care, going completely MIA
We have finally found the specialists Josiah needs to stay alive, BUT they are in Boston—a city with a cost of living 48% higher than the national average.
Because we are moving with no local resources and two babies, we must secure our stability upfront to ensure Josiah never misses a treatment.
• Cross-Country Medical Relocation:
$4,000 – $8,000 Moving our family and Josiah’s / Our Necessary Essentials 2,000 miles on less than three months' notice requires professional logistics to ensure his safety.
• Securing Housing Without Local Income: $45,000 – $50,000 Boston rent for a 2-bedroom averages $3,500 – $4,200/month.
Without a job established there yet, or the time to find/get one, we must provide a "Year of Security" (First/Last/Security/Broker fees + several months upfront) just to get an apartment door open.
• Basic Survival & Utilities:
$15,000 – $18,000 This covers 12 months of high-cost heat, electricity, and water, plus groceries and essential supplies for two toddlers while we transfer our entire lives and insurance to a new state.
PLEASE DONATE & SHARE
We aren't just moving; we are fighting for Josiah’s life in the only place that can save it.
Our son, Josiah, is fighting for his life against a rare and life-threatening vascular disease: Vein of Galen Malformation (VOGM)
a rare, life-threatening vascular disease where blood vessels in the brain fail to develop properly
This condition has already forced him through:
•FIVE Major Surgeries
• HEART FAILURE At 3 Months Old!
•Hydrocephalus At 1 Years Old!
•UNTREATED SEIZURES & EPILEPSY
•Untreated JUGULR Vein Narrowing for 6 months That Almost Killed Josiah In May 2026..
& a MASSIVE terrifying neurological decline since birth❤️
ALL OF THE ABOVE ⬆️
could have been COMPLETELY AVOIDED if properly treated.
A Breakthrough In Care
After 2 Years of being told to "wait and see" by teams in New Mexico, Texas, and Colorado, we finally had a life-changing meeting with Boston Children’s Hospital and Dr. Orbach on March 10th…
They Have Decided To Take On Josiah As A Patient!
One of the best hospitals in the world for Josiah’s diagnosis, BUT we need to make sure we can actually keep getting him to these appointments..
Our Son is being failed. Our family is being failed. And we are being forced into a system that’s not just failing Josiah, but it’s killing him
How Your Donations Create a Lifeline: ❤️
Our main goal is to now RELOCATE Josiah, his brother, and their mom From Albuquerque, New Mexico, to Boston, Massachusetts for Life-Saving Care on May 16, 2026 ❤️
•A Safe Home in Boston
Securing stable housing near Boston Children’s Hospital is our top priority to provide Josiah and Nikoli with a sterile, safe environment until Josiah’s life is no longer in danger of being managed by local doctors in our home state, & the care coordinators meant to mend this gap in care, going completely MIA
We have finally found the specialists Josiah needs to stay alive, BUT they are in Boston—a city with a cost of living 48% higher than the national average.
Because we are moving with no local resources and two babies, we must secure our stability upfront to ensure Josiah never misses a treatment.
• Cross-Country Medical Relocation:
$4,000 – $8,000 Moving our family and Josiah’s / Our Necessary Essentials 2,000 miles on less than three months' notice requires professional logistics to ensure his safety.
• Securing Housing Without Local Income: $45,000 – $50,000 Boston rent for a 2-bedroom averages $3,500 – $4,200/month.
Without a job established there yet, or the time to find/get one, we must provide a "Year of Security" (First/Last/Security/Broker fees + several months upfront) just to get an apartment door open.
• Basic Survival & Utilities:
$15,000 – $18,000 This covers 12 months of high-cost heat, electricity, and water, plus groceries and essential supplies for two toddlers while we transfer our entire lives and insurance to a new state.
PLEASE DONATE & SHARE
We aren't just moving; we are fighting for Josiah’s life in the only place that can save it.
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