- J
The past ten years have been quite the rollercoaster leading to where we are today on the journey for Steve, my husband, to receive a double lung transplant. It really started in 2004 with him being constantly short of breath and coughing day and night. He went to the doctor, had a bronchoscopy, and then an open lung biopsy which lead to a diagnosis of pulmonary fibrosis. The doctor told us there was no type of treatment available and nothing else that could be done for it. This was in 2005, and at the time, they only gave him five more years to live. Our physical limitations were well matched with my progressive struggle to walk as a result of my multiple sclerosis and his inability to walk any length of time before becoming unable to breath. We both continued to work and go on with life as normal. Steve was able to manage at first with only using oxygen at night as he slept, but over the past few years, it has become a constant need. In 2014, he was dealt another blow by being diagnosed with bronchiectasis which leads to repeated, serious lung infections. This added lung condition sent us to Duke University Hospital in 2015 where they determined that he only has twenty percent lung capacity left and he would need a double lung transplant or he wouldn’t live past another year.

