On Thursday, January 18th just after 4pm baby Sophia went to be with Jesus where she is experiencing rest, peace, love, and joy beyond comprehension. Oleg and Dasha want to sincerely thank all of their donors and supporters throughout this unimaginably difficult season in their lives. They also wanted to thank all of you for your prayers. Here are a few updates and praise reports that they wanted to share with you all as a result-
- Seattle Children's Hospital has decided to cover virtually ALL of baby Sophia's costs regarding her care and stay at their facility (I've adjusted the goal amount due to this good news)
- All of the funding in this campaign will go towards helping Oleg and Dasha's family get back into a healthy rhythm of life - cover costs for funeral expenses and costs of living due to the amount of time taken off from work.
MEMORIAL AND BURIAL SERVICE INFO:
There will be a Memorial Service for baby Sophia on Wednesday, January 24th.
918 Division Ave
Tacoma, WA 98403
The Burial Service will be the following morning on Thursday, January 25th.
Mountain View Cemetery
2020 Mountain View Dr.
Auburn, WA 98001
Dasha would like to let you know a few details about the memorial service:
-Dress code is black and white.
-Live stream will be available via Instagram @dasha.katrechko.
There is also a MEAL TRAIN that was set up for Oleg and Dasha's family by their community of family and friends. Please consider joining us as we look to serve and support them during this time.
Please join me as we continue to pray for them and show them love and support in the coming weeks. Thank you!
***** ORIGINAL POST BELOW *****
My friends Oleg and Dasha became parents for the second time, recently. They welcomed their baby girl, Sophia, into the world on December 18th at 4:02pm.
Sophia is a precious baby girl who was born with a sigfinicant heart defect. Her complex diagnosis is as follows:
- Double outlet right ventricle.
- Small mitral valve and left ventricle.
- Absent pulmonary valve.
- Enlarged pulmonary arteries.
- Single ventricle.
I'll have Oleg and Dasha take the story from here:
"I can’t even begin to simplify what each of these terms mean. But one thing that stunned us was the fact that none of the cardiologists have ever seen this combination of defects in one heart at Seattle Children’s Hospital.
We found out news of Sophia’s heart condition on the day we found out we were having a baby girl(gender scan).
Something that Dasha has struggled with all pregnancy was abnormally high fluid levels. So after her first amnio reduction we received even more dreadful news. Sophia has DiGeorge syndrome. It’s a disorder caused by a small missing piece of chromosome 22.
Sophia Grace Katrechko was born at UW Medical Center. She was immediately rushed to Seattle Children’s Hospital and admitted into Their Cardiac Intensive Care Unit (CICU) due to a very unstable heart and difficulty breathing. For the next 8 hours doctors and nurses rushed to try and stabilize her. Using all heart and blood medication at their disposal to help bring her heart rate, blood pressure, and blood oxygen levels up. After a blood transfusion they finally were able to bring her numbers up to a tolerable level. This was short lived. At midnight, being only 9 hours old she was rushed to the operating room for an emergency operation. We were blessed with the Surgeon that was on call that night.
Surgery went well. But when it came time to warm up her body post operation something went wrong. So the doctor was forced to put baby Sophia on life support (ECMO).
It has now been 9 days. The CICU nurses and doctors have tried twice to wean Sophia off of ECMO with no success. Every day she is on this machine it is costing around $15,000. With each attempt she has grown stronger but with a few setbacks. We are hoping and praying that the next time they try to remove her she will be strong enough to take over on her own."
It is clear that the road to recovery for baby Sophia will be a long one and the cost to support her journey will be an overwhelming one. Oleg and Dasha are asking for your prayers and for your support in any way possible to help them reach their goal in the coming months if not years ahead. Here is a summary breakdown of what their estimated medical expenditure will be:
ECMO (9 days so far and counting) - 15k / per day
CICU stay (9 days so far and counting) - 5k / per day
Emergency Heart Surgery - 150-200k +
Having to worry about finances when your baby is fighting for her life should be the last thing any parent should have to go through. Please join me in supporting them on this difficult, yet hopeful, journey to recovery for their precious miracle baby, Sophia.
Here are a few update posts from Dasha through Instagram:
Here are a few photos of Sophia and her family:
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