Shay and Finn

Shay and Finn Guihen  are 7 year old identical twin boys, born with Pfeiffer Syndrome Type III: a rare genetic disorder causing a number of very challenging and life limiting disabilities. Having spent the first 2 years in Temple Street Hospital and two and a half years in Laura Lynn Hospice the boys were  home permanently for 18 months and were cared for by their parents Denise and Dermot, they were delighted to have their family together all under one roof. That was until last Christmas when the boys were hospitalised with bad infections. They spent Christmas 2017 in Temple Street hospital and have remained there since, getting home for 3 days a week. It’s difficult without any support of a Home Care Package that was sanctioned by HSE in 2013.  This round the clock care, though given with much love, is fiercely demanding and relentless.  There is no option for the parents to be sick or have a break away, not even a night at the movies. Support by way of donations, however small, to pay for private nursing care at home would be a dream come true. Denise and Dermot, the loving parents could really do with a few hours break from the 24/7 demands of caring for the boys and maybe a little time to spend together as a couple. They’re not looking for a luxury holiday away from their boys just maybe an hour here or there  would mean the world to them and to the boys little brother Riley. Private nursing care would make them feel at ease if they were to step out of the home for an hour knowing their boys were in the hands of professionals who know how to take care of them in their absence. Thank you for taking the time out to complete the reading of this notice. Please feel free to share it with your friends. If you'd like to see them in action click here

Donations ()

  • Sheila Flynn 
    • €100 
    • 3 mos
  • Tommy guihen 
    • €20 
    • 3 mos
  • Daniele Del Gener 
    • €20 
    • 4 mos
  • Anonymous 
    • €20 
    • 5 mos
  • Anonymous 
    • €100 
    • 6 mos
See all

Organizer

Denise Nolan 
Organizer
Kildare, Kildare Ireland
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