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The last 8 months for our family have been very difficult. We have been dealt one medical tragedy after another and even with decent insurance, the financial burden has been heavy.
Jaxson’s Story...
Jaxson is one of the strongest people I know and has had to deal with an unbelievable amount of trials.
On December 12, 2014, he and his brother Maxwell, were riding their scooters home down an alleyway...when a collie/lab mixed dog jumped their owner’s 6 foot high fence and attacked. This was a shock as the boys had done nothing to provoke nor even knew of it’s presence. Jaxson was in front and so he took the attack. As he was in 6th grade and Max was in 3rd grade, this was actually a blessing.
The dog jumped up on Jaxson’s chest and latched it’s jaw onto the left side of his face, missing his eye by an inch.
This dog attack caused unimaginable results for our family. Jaxson suffered from intense PTSD and required almost 3 years of treatments.
As the end of Jaxson’s 9th grade year, his first in High School, was approaching, he was doing amazingly well. He was able to go to school, play on the Lacrosse team, was making friends and we thought things were finally moving in the right direction.
At the end of May 2018, his voice started changing, it sounded like he had a cold. Jaxson then came to us and said he couldn’t blow out the left side of his nose and was having INSANE bloody noses. Which resulted in 2 visits to InstaCare (as I was so worried about how bad the bloody noses were). Then a visit to the Pediatrician and finally to a Pediatric ENT at Primary Children’s Hospital.
On September 22, 2018 he was diagnosed with a very rare disease, Juvenile Nasopharyngeal Angiofibroma or JNA. This is a disease that only presents in adolescent males and there are about 50 diagnosed cases a year in the USA.
The tumor was very large, about the size of a baseball, in his nasal cavity. We caught it before it had grown into his brain stem or eye socket.
On October 29, 2018, Jaxson was admitted to Primary Children’s Hospital for treatment. The whole process took over 12 hours, with 8 straight hours of surgery.
Luckily the tumor was benign, but requires ongoing monitoring until around the age of 20, when the disease will just disappear. He currently sees the Pediatric ENT every 3 months and has an MRI every 6 months. His MRI from last week came back with no new growths! We see the ENT in a few days to go over the results and camera scope him again.
After insurance, our out of pocket expenses for Jaxson’s JNA treatment so far, has totaled about $20,000 and will incur about $7000 a year until the disease disappears.
Chad’s Story...
About 3-4 years ago Chad began having problems with his bowels. He went to our Doctor and after running some diagnostic tests was diagnosed with IBS.
As things have progressively gotten worse and several visits to our Doctor, there was no improvement. Due to his age and health history there was nothing to indicate any problem worse than IBS.
By the end of June 2019, Chad was inspired to go see a GI Doctor...there have been many miracles, inspirations and divine interventions that have occurred since then!
However, he has been diagnosed with Stage IIIC Colon Cancer.
This means that his tumor is very large, has grown through the muscle layer and has metastasized into 8-10 lymph nodes but has NOT metastasized into any other organs.
We have chosen to use the newest, most aggressive treatment plan in use today, which has the best life expectancy rates.
Cancer treatments have historically been:
Radiation Therapy (to shrink the tumor and kill the cancer cells); Surgery (to remove as many of the remaining cancer cells/tissue); Chemotherapy (to kill any remaining microscopic cancer cells in the body that do not show up on X-ray).
By treating cancer this way, they have had more instances of the cancer spreading to other parts of the body while they are focusing treatment on the initial cancer site. Which results in starting the process all over again with the newly created cancer sites.
We have chosen the innovative treatment plan to receive all the Chemotherapy Infusions first, then Radiation + Oral Chemotherapy and finally Surgery. This is done to kill ALL microscopic cancer cells throughout the body first and then aggressively treat the initial cancer site.
The treatment will take roughly 8 months from beginning to end as long as there aren’t any complications. Chad will start off with 4 doses of Chemotherapy Infusions with 1 dose every other week and then a CT scan to make sure it’s working (i.e., tumor shrinking). He will then repeat this process one more time. If the cancer has gotten smaller and not spread, he will move on to Radiation Therapy with an Oral Chemotherapy. Radiation will be done Monday-Friday every day for
6-8 weeks. He will then move on to the Surgery which will be done by a robot. He will have an ileostomy for 6-8 weeks while his colon heals and then will go back into surgery to resect his bowels.
After all these treatments we will have approximately $2,000,000 in medical bills. After insurance, our expense should be about $30,000.
Which is amazing, but still a very heavy burden to bear. And this all hinges on Chad’s ability to work during his treatment. Kristin has not been able to work outside the home due to all of our kids having special needs, especially with our youngest, who is autistic.
This is very difficult for us to ask for help. We are both the oldest of our siblings and are more comfortable in the role of helping others and being self-sufficient. As we have sought out ways to make it through these trials, we have been encouraged to set up a way for our neighbors, friends and family to help us.
Meals are ALWAYS appreciated, especially during Chad’s infusions and any financial help to cover these medical expenses (especially the costs that are not covered by insurance) would help to remove our burden...so we can focus on everyone’s health.
We Love and Thank You All,
Chad and Kristin Schultz
Jaxson’s Story...
Jaxson is one of the strongest people I know and has had to deal with an unbelievable amount of trials.
On December 12, 2014, he and his brother Maxwell, were riding their scooters home down an alleyway...when a collie/lab mixed dog jumped their owner’s 6 foot high fence and attacked. This was a shock as the boys had done nothing to provoke nor even knew of it’s presence. Jaxson was in front and so he took the attack. As he was in 6th grade and Max was in 3rd grade, this was actually a blessing.
The dog jumped up on Jaxson’s chest and latched it’s jaw onto the left side of his face, missing his eye by an inch.
This dog attack caused unimaginable results for our family. Jaxson suffered from intense PTSD and required almost 3 years of treatments.
As the end of Jaxson’s 9th grade year, his first in High School, was approaching, he was doing amazingly well. He was able to go to school, play on the Lacrosse team, was making friends and we thought things were finally moving in the right direction.
At the end of May 2018, his voice started changing, it sounded like he had a cold. Jaxson then came to us and said he couldn’t blow out the left side of his nose and was having INSANE bloody noses. Which resulted in 2 visits to InstaCare (as I was so worried about how bad the bloody noses were). Then a visit to the Pediatrician and finally to a Pediatric ENT at Primary Children’s Hospital.
On September 22, 2018 he was diagnosed with a very rare disease, Juvenile Nasopharyngeal Angiofibroma or JNA. This is a disease that only presents in adolescent males and there are about 50 diagnosed cases a year in the USA.
The tumor was very large, about the size of a baseball, in his nasal cavity. We caught it before it had grown into his brain stem or eye socket.
On October 29, 2018, Jaxson was admitted to Primary Children’s Hospital for treatment. The whole process took over 12 hours, with 8 straight hours of surgery.
Luckily the tumor was benign, but requires ongoing monitoring until around the age of 20, when the disease will just disappear. He currently sees the Pediatric ENT every 3 months and has an MRI every 6 months. His MRI from last week came back with no new growths! We see the ENT in a few days to go over the results and camera scope him again.
After insurance, our out of pocket expenses for Jaxson’s JNA treatment so far, has totaled about $20,000 and will incur about $7000 a year until the disease disappears.
Chad’s Story...
About 3-4 years ago Chad began having problems with his bowels. He went to our Doctor and after running some diagnostic tests was diagnosed with IBS.
As things have progressively gotten worse and several visits to our Doctor, there was no improvement. Due to his age and health history there was nothing to indicate any problem worse than IBS.
By the end of June 2019, Chad was inspired to go see a GI Doctor...there have been many miracles, inspirations and divine interventions that have occurred since then!
However, he has been diagnosed with Stage IIIC Colon Cancer.
This means that his tumor is very large, has grown through the muscle layer and has metastasized into 8-10 lymph nodes but has NOT metastasized into any other organs.
We have chosen to use the newest, most aggressive treatment plan in use today, which has the best life expectancy rates.
Cancer treatments have historically been:
Radiation Therapy (to shrink the tumor and kill the cancer cells); Surgery (to remove as many of the remaining cancer cells/tissue); Chemotherapy (to kill any remaining microscopic cancer cells in the body that do not show up on X-ray).
By treating cancer this way, they have had more instances of the cancer spreading to other parts of the body while they are focusing treatment on the initial cancer site. Which results in starting the process all over again with the newly created cancer sites.
We have chosen the innovative treatment plan to receive all the Chemotherapy Infusions first, then Radiation + Oral Chemotherapy and finally Surgery. This is done to kill ALL microscopic cancer cells throughout the body first and then aggressively treat the initial cancer site.
The treatment will take roughly 8 months from beginning to end as long as there aren’t any complications. Chad will start off with 4 doses of Chemotherapy Infusions with 1 dose every other week and then a CT scan to make sure it’s working (i.e., tumor shrinking). He will then repeat this process one more time. If the cancer has gotten smaller and not spread, he will move on to Radiation Therapy with an Oral Chemotherapy. Radiation will be done Monday-Friday every day for
6-8 weeks. He will then move on to the Surgery which will be done by a robot. He will have an ileostomy for 6-8 weeks while his colon heals and then will go back into surgery to resect his bowels.
After all these treatments we will have approximately $2,000,000 in medical bills. After insurance, our expense should be about $30,000.
Which is amazing, but still a very heavy burden to bear. And this all hinges on Chad’s ability to work during his treatment. Kristin has not been able to work outside the home due to all of our kids having special needs, especially with our youngest, who is autistic.
This is very difficult for us to ask for help. We are both the oldest of our siblings and are more comfortable in the role of helping others and being self-sufficient. As we have sought out ways to make it through these trials, we have been encouraged to set up a way for our neighbors, friends and family to help us.
Meals are ALWAYS appreciated, especially during Chad’s infusions and any financial help to cover these medical expenses (especially the costs that are not covered by insurance) would help to remove our burden...so we can focus on everyone’s health.
We Love and Thank You All,
Chad and Kristin Schultz
Organizer
Kristin Hardman Schultz
Organizer
South Jordan, UT