Sarah's Fight: Mitochondrial, Gastroparesis, Addison's

Hello everyone,

I'm reaching out to you today to share the story of Sarah, a remarkable individual who, despite her challenges, continues to inspire those around her. Sarah has been diagnosed with three serious conditions: Mitochondrial Disease, Gastroparesis, and Addison's Disease. These conditions have drastically altered her life, but with your support, we can help her manage her health and continue to live her life with dignity and hope.

About Sarah's Conditions:

Mitochondrial Disease: This is a group of disorders caused by dysfunctional mitochondria, the part of the cell responsible for generating energy. Sarah's particular form affects multiple organ systems, leading to chronic fatigue, muscle weakness, and a range of other symptoms that make daily living challenging.

Gastroparesis: Known as "delayed gastric emptying," this condition slows or stops the movement of food from the stomach to the small intestine without any mechanical blockage. Sarah experiences severe nausea, vomiting, and abdominal pain, significantly impacting her nutrition and quality of life. Due to this, Sarah has a feeding tube to ensure she receives the nutrition she needs.

Addison's Disease (Adrenal Insufficiency): This involves the adrenal glands not producing enough cortisol and sometimes aldosterone, which can lead to symptoms like severe fatigue, weight loss, and low blood pressure. Sarah requires daily hormone replacement therapy and must manage her condition carefully to avoid adrenal crisis.

Why We Need Your Help:

Sarah's medical journey requires:

Specialized Medical Care: Including regular visits to experts in mitochondrial diseases, endocrinology, and gastroenterology for ongoing treatment and monitoring.

Medication and Supplements: She needs a variety of medications for symptom management, including those for nausea control, and muscle support ect.

Nutritional Support: Given her gastroparesis and the use of a feeding tube, Sarah requires specific dietary accommodations to ensure she receives adequate nutrition.

Mobility Aids: To help with the physical limitations brought on by her muscle weakness and fatigue.

Funding Goals:

Stiltz Home Elevator: Sarah lives in a multi-story home, and her conditions make climbing stairs extremely difficult and sometimes dangerous. A Stiltz home elevator would provide her with the independence to move between floors safely and comfortably without the physical strain of stairs.

Medical Supplies and Equipment: Medications, supplements, and durable medical equipment necessary for managing her conditions effectively, including supplies for her feeding tube, ensuring she has what she needs to stay as healthy as possible throughout the year.

Quality of Life Improvements: Ensures Sarah can live with some comfort and joy despite her conditions, covering items or experiences that can improve her mental and emotional well-being.

Home Improvements: Making Sarahah's house safer and easier to navigate with her conditions, including installing ramps, hardwood flooring to move around easier, modifying bathrooms for accessibility, and other modifications to reduce the risk of falls and enhance her independence at home.

How You Can Help:

Every donation, no matter the size, will make a significant difference. Every share of the GoFundMe will help spread awareness and the word about Sarah's story.

Your Impact:

Your donation(s) will not only help alleviate the financial burden of Sarah's medical expenses but also offer her the emotional support to keep fighting. It will enable her to continue with her treatments without the added stress of how to afford them, allowing her to focus on her health and wellbeing. These specific goals aim to enhance her quality of life, mobility, medical care, and the safety of her living environment comprehensively.

Conclusion:

Sarah is a fighter, but she can't do this alone. Together, we can provide her with the support she needs to manage these complex conditions. Please consider donating to Sarah's GoFundMe campaign and share her story to spread awareness about these often misunderstood illnesses. Thank you for your kindness, support, and for helping Sarah maintain her strength and hope.

Donate Now to Make a Difference!