Help SUPER CHARLIE beat cancer!

https://www.facebook.com/groups/1729934850573407/


Charlie was born a healthy baby. He was full of life and always on the go. When he was 10 months old he developed a black eye, lost his appetite and looked pale.
After just 1 visit to the GP and an urgent blood test he was rushed to Great Ormond Street Hospital.
He was extremely unwell. Our world was turned upside down and our hearts were broken, when after extensive tests we were given the news no person let alone a parent of a young baby wants to hear - our beautiful baby had CANCER!
But not only did he have cancer, it was one of the most aggressive and hardest cancers to treat - STAGE 4 high risk NEUROBLASTOMA.

The cancer had completely engulfed his body. He had a tumour the size of a grapefruit in his tummy, tumours behind his eyes, base of skull, in his chest, behind his liver, in his head squashing his brain, his spine,facial bones, ribs, pelvis, shins and lymph nodes. The cancer had also spread to his bone marrow.
We couldn't understand how there was so much and we didn't know!

Charlie endured 70 days of intensive chemotherapy called Rapid COJEC one of the most intensive chemotherapy regimes in modern medicine. He faught hard and when it had finished all that remained was the huge tumour in his tummy.

On 8th March 2015 Charlie had surgery to remove the primary tumour. He was in surgery for 6 hours and was extremely poorly afterwards.
20 days later Charlie embarked on what would be the hardest part of his journey a STEM CELL TRANSPLANT. He became very poorly and developed a life threatening liver complication called VOD. But untrue Super Charlie style he faught hard and after 9 weeks away from home and his family he came home.

Charlie is now having immunotherapy to try to train his immune system to fight this deadly disease.

But even after all of the harsh treatments, the pain and suffering he has had to endure. Charlie's chance of survival to 5 years is only 63%. Also his cancer may return! In fact High Risk NEUROBLASTOMA has a 50% chance of coming back and if it does treatment is minimal and usually not effective.

We desperately need your help and generosity to help us keep this monster away from our beautiful baby.
There are currently trials available in the USA which can prevent relapse to children with Neuroblastoma. However they are very very expensive. We need to raise over £100,000 as the NHS will not fund it.
We need to get Charlie on these trials to increase his chances and let him be the happy, healthy boy he should grow up to be.
Please help us give our baby a bright future which is cancer free.

Donations

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  • Anonymous 
    • £40 
    • 38 mos
  • The Federation of Greenways Schools. 
    • £1,646 
    • 43 mos
  • Emily Stevens 
    • £50 
    • 44 mos
  • Victoria Macluskie 
    • £5 
    • 44 mos
  • Sophie Thurkettle 
    • £5 
    • 44 mos
See all

Organizer

Claire Elms 
Organizer
Southend-on-Sea, East of England, United Kingdom
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