Donate for Lumir's Microtia Surgery and Musical Future

https://www.youtube.com/watch?v=g83-TjKUlzQ

FULL-TIME Mom and A Microtian 3-Year-Old

I am a 46-year-old music therapist mom trained in the State of Indiana of the United States and Germany. This fundraising project is for my 3-year-old son. My son Schnee Lumir Christian Lin (SL) is an i.v.f baby born in 2021. He has a grade III unilateral microtia (right ear) and at this moment NO CT scan has been neither performed nor available due to no healthcare coverage, in the same time a long line for a hearing aid implant surgery in Asia is the major concern. As a musician's mom and music producer, we are planning a concert and also album recordings available for donors for his surgery, which we wish to be scheduled by the end of year 2024. Lumir is a happy 3-year-old whose papa has a musician dream for him-to be a good cellist, a fine artist, perhaps a generous and outstanding healthcare professional in the future.

About MICROTIA. Why is it and do we need a SURGERY?

Simply put, microtia is a deformity of the outer ear as well as congenital aural atresia. It is mostly popular among Asian, Caucasian and rarely found in babies of African ethnicity. Lumir has a typical grade III, in which his daddy says his small ear looks just like a cello’s ‘scroll.’ With an early language development at 6 months old, Lumir expressed that ‘the sounds of his two ears are different’ after he turned 2. The ears of human infants are normally formed and developed in a female’s womb from 18th week to 24th week of pregnancy. For microtians’ ears, we see irregular cartilage tissue on the upper part of the bulge of the ear and a lobe-like tissue in the lower part, not fully shaped. In addition, failure to develop an ear canal suggests the inner ear structure such as cochlear and nerves could be missing. This will make a regular microtia surgery more complicated and challenging. While walking on the street, it is often more difficult for them to react and detect sounds, noises which are associated with possible dangers from the right side. The Austrian-made hearing aid implant is estimated to be USD 20,000/each and for the moment, my son is not qualified for any insurance in Taiwan. For only 1 or 2 surgeons in Taiwan are only helping toddler patients who are over 5 or 6 yrs old. A required CT scan cannot be practiced due to medical law and rare case studies in Taiwan.

Due to sub-replacement fertility and aging impacts, healthcare resources are decreasing and more difficult to find and achieve. Because we don't know about the future and more babies like Lumir, and the true experiences of what microtian parents have been through, we do know that music is power, music is a gift from God to connect us together as living angels on earth.

We sincerely invite you to be an important part of this talented boy's micratian life, and perhaps to help train more young surgeons, helping parents like us who have been mostly self-help for the past 3 years.

We promise to do the same for people like us, pass it on and share to help!