We are raising money in aid of Reverse Rett

Rett Syndrome is a rare neurological condition which most often strikes previously healthy little girls between their first and second birthday, leaving them with multiple disabilities and medical complexities for life.

Most children and adults with Rett are unable to speak, walk, or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal, and orthopaedic issues are common. Most people with Rett syndrome are severely disabled and will need round the clock care for life.

There is currently no cure or treatment for Rett syndrome however In 2007, researchers proved that a cure for Rett is possible. The scientists did this by using genetic engineering to replace the missing protein in a mouse model. These experiments showed that when the protein is replaced at the right level, the symptoms of Rett go away.

Gene therapy is one way that this problem can be corrected. Thanks in part to research funded by Reverse Rett, Rett syndrome gene therapy clinical trials are now underway.

Help us to help find a cure

and every donation will help. Thank you in advance for your contribution to this cause that means so much to me.

Robert will be running the down hill run on 6th July come and support him for a good cause and cheer him on