We're Tamara and Tess., Ph.Ds and ME/CFS patients on a mission to improve the lives of people with ME/CFS and Long COVID. This fundraiser is to help pay for our goal of helping 500 participants take part in our RemissionBiome Protocol by the end of 2024. All of the money raised goes directly to purchasing the probiotics and anti-neuroinflammatory supplements used in the protocol. The protocol costs $6k per participant, which includes extensive testing. Most people in this community can not shoulder this cost. We have every intention to get these costs down in the future and make our protocol more readily available. However, as of today this is what our costs are. $6k x 500 participants = $3M. These 500 people all applied to do the protocol and are ready to start when we are ready to support them. Your donation will go directly to supporting actual people suffering from the debilitating symptoms resulting of ME/CFS and Long Covid. Please help us help them improve the quality of their lives.
More information about us: We are RemissionBiome. A community-science, patient led, self-experiment project researching how modifying the microbiome affects the brain and as a result can shift the health baseline in ME/CFS & Long Covid patients. Our website https://Remissionbiome.org has details of our stories as well as the protocol we used for our self-experiments and the science. Watch this info session to get an overview.
The idea for RemissionBiome came from us experiencing temporary remission, after taking a mix of antibiotics (& in Tamara’s case, probiotics). While remission was fleeting, afterwards, our baselines improved and were lasting. We could both do more, including starting this company to help others.
To ensure this was real we did a pilot study in March and were able to recreate the remission events and collect samples before, during, and after to try to understand what happens during the events! Shortly after our pilot study, we got reports of remission events happening in 10 other people.
In July we opened an application for people in the ME/CFS and Long COVID communities to be part of the experiment. We got over 500 applications and narrowed it down to a group of 50. The "Renegade50" started the protocol in mid-August. The first wave of participants to take the Amoxiclav antibiotics will be at the end of October, with staggered waves coming shortly after that.
Our goal in 2024 is to support the 500 additional applicants through the RemissionBiome protocol before making it available to everyone. We have a plan and with your support going directly to the participants, we believe we can do it!