Quinny the Pooh
Donation protected
We've had a lot of people ask if we've set up a gofundme or if they can send gift cards. With Quinn being on Tricare and then we have a supplemental insurance we shouldnt have to pay very much. So anything given will go towards gas+food so i can be with her everyday and towards saving up so we can get another reliable car to transport our Quinny the Pooh in. Or towards bills, plane tickets and whatnot. We're not the type of people to want stuff handed to us. There are just so many people that want to help and we greatly appreciate it. All i ask is you leave an address so we can send thank you cards. :)
Quinn's story: It all started back in January, i was at an ultrasound, they told me that she had a congenital heart defect called hypoplastic left heart syndrome. Where the left side of her heart never developed completely. They told us that she would have to undergo a set of 3 surgeries to make her heart be able to function, but it would never be the same as yours or mine. One surgery at 5 days, one at 3-4 months and one between 2-5 years. They would have to make it so the right side does all the work. At 33 weeks i was hospitalized for low amniotic fluid. A week later they released me but told me to take it easy. (If anyone really knows me they know hard that is for me) and had to go in 2 times a week for an ultrasound and non stress test. At 36 weeks they told me I was being induced the following week because of the continuous low fluid. Rying to scramble to get Rob home was fun. :) Quinn Rae Lahti was born the following Wednesday April 27th 2016 at 5:58pm and was immediately taken to the NICU at helen devos. That following Monday her 1st surgery was scheduled for 7 o'clock in the morning. They put in a shunt to make sure blood got to the lungs. They surgery went very well and was super stable the whole time. She was doing very well the days that followed. That thursday they took out her chest tubes, pacer wire and breathing tube. However later that day she had to have the breathing tube put back in. The days that followed she looked better and better and slowly was losing some of her wires and medications. Sunday the 8th, mother's day, I was finally able to hold her again. She had gotten the breathing tube out again the day before. Over the next few weeks she would look good and then have to have the breathing tube back then look good again and then have to have the breathing tube back again. She also developed stomach issues called numetosis and got put on gut rest for a few days, which meant no food and had to have her nutrients through an iv. It seemed to go away. Few days later it was back again so they put her on gut rest for a longer period of time. The most recent time she got the breathing tube back was thursday the 9th of June. She also had to have a central line put back in that day. They tried one leg and couldnt get it in so they put it in the other. But she got a hematoma over the one side they tried to put it in. They decided she needed to go in for a heart catheter to make sure there were no obstructions or kinks in the shunt they put in. Because her oxygen saturations kept dipping lower and lower And would do an inbetween surgery to put in another shunt. They also wanted to fix a leaky valve. But wanted to wait a few days so that the hematoma on that artery could heal. So with that being said, on Monday the 13th she went down for the cath. They found that the arches looked fine and the shunt looked fine. So instead of doing the inbetween surgery they decided they wanted to do the 2nd phase surgery. Usually done at about 3-4 months. The anatomy of the heart changes between the first and second surgery and hers had already went through that change. So at 6 weeks and 5 days old she underwent her 2nd surgery. The 2nd surgery they divided the shunt and reroute some of the blood flow. The surgery itself had went fine but she had some trouble coming off the bypass machine. It took about 5 times coming off and going back on before she stabled out. Her blood pressures were all over the place her as well as her sats were all over. But finally got stable. Tuesday went as to be expected after her 2nd surgery. She was rather puffy and very red in the face. Which they said was normal after the 2nd surgery because there was more blood flow to the top half of the body. Tuesday night they started to notice twitching in her right arm and right eyelid and lipsmacking. She was starting to have seizures. So they hooked her up to an eeg to monitor her and put her on some anti seizure medications and a paralytic so she couldnt move. She had them intermittently tuesday night into wednesday and during the day wednesday. So late wednesday night they decided to take her down for a ct scan. The ct scan showed she had bleeding in the back of her brain but not enough to put pressure on her brain so they werent worried about draining it. She also had a part of her brain that they were calling a stroke, for whatever reason it wasnt getting oxygen to it for some time. They believe that was the part that was causing the seizures. So they kept her on the seizure medication and kept the eeg on and just monitored her. She was also having trouble keeping her sats up. Tuesday night and wednesday. So Thursday morning they took her back down to the cath lab to see if there was any obstructions. They found a vessel between the pulmonary artery and the left lung that was very narrow and it actually had folded over on itself. They put a stent in to widen the vessel to allow appropriate blood flow to travel to the lung. They needed to start her on a blood thinner to reduce the chance of a blood clot around that stent. But with the bleeding in her brain that was very scary, with thin blood there was more chance of bleeding in the brain and if it were to bleed into that deoxygenated part of the brain it would be harder for her to recover from that. So they started her on a very very tiny dose of blood thinner to be able prevent clots and hopefully low enough to prevent any more bleeding in the brain. Friday the 17th they took the EEG off because she had went a long period of time without a seizure. They took her off the paralytic and took out 2 of her chest tubes from surgery. Her sats seemed pretty stable after the stent got put in. Saturday they put her back on the EEG because she had spikes in her heart rate and blood pressure and they wanted to make sure they werent because she was having seizures they cant physically see. Sunday she got her last chest tube out and 2 of the 4 ivs out. And had a restful day. Monday the 20th, she got the EEG off again. She hadnt had a seizure since her ct scan. she had a follow up MRI which looked as good as to be expected no more bleeding in the brain. Some of her meds got weened and they prepared her to get her breathing tube out. She does have some acne and redness on her head due to eeg nodes but should go away in a few days with a good bath and benadryl. Hoping its onward and upward from here.
Quinn's story: It all started back in January, i was at an ultrasound, they told me that she had a congenital heart defect called hypoplastic left heart syndrome. Where the left side of her heart never developed completely. They told us that she would have to undergo a set of 3 surgeries to make her heart be able to function, but it would never be the same as yours or mine. One surgery at 5 days, one at 3-4 months and one between 2-5 years. They would have to make it so the right side does all the work. At 33 weeks i was hospitalized for low amniotic fluid. A week later they released me but told me to take it easy. (If anyone really knows me they know hard that is for me) and had to go in 2 times a week for an ultrasound and non stress test. At 36 weeks they told me I was being induced the following week because of the continuous low fluid. Rying to scramble to get Rob home was fun. :) Quinn Rae Lahti was born the following Wednesday April 27th 2016 at 5:58pm and was immediately taken to the NICU at helen devos. That following Monday her 1st surgery was scheduled for 7 o'clock in the morning. They put in a shunt to make sure blood got to the lungs. They surgery went very well and was super stable the whole time. She was doing very well the days that followed. That thursday they took out her chest tubes, pacer wire and breathing tube. However later that day she had to have the breathing tube put back in. The days that followed she looked better and better and slowly was losing some of her wires and medications. Sunday the 8th, mother's day, I was finally able to hold her again. She had gotten the breathing tube out again the day before. Over the next few weeks she would look good and then have to have the breathing tube back then look good again and then have to have the breathing tube back again. She also developed stomach issues called numetosis and got put on gut rest for a few days, which meant no food and had to have her nutrients through an iv. It seemed to go away. Few days later it was back again so they put her on gut rest for a longer period of time. The most recent time she got the breathing tube back was thursday the 9th of June. She also had to have a central line put back in that day. They tried one leg and couldnt get it in so they put it in the other. But she got a hematoma over the one side they tried to put it in. They decided she needed to go in for a heart catheter to make sure there were no obstructions or kinks in the shunt they put in. Because her oxygen saturations kept dipping lower and lower And would do an inbetween surgery to put in another shunt. They also wanted to fix a leaky valve. But wanted to wait a few days so that the hematoma on that artery could heal. So with that being said, on Monday the 13th she went down for the cath. They found that the arches looked fine and the shunt looked fine. So instead of doing the inbetween surgery they decided they wanted to do the 2nd phase surgery. Usually done at about 3-4 months. The anatomy of the heart changes between the first and second surgery and hers had already went through that change. So at 6 weeks and 5 days old she underwent her 2nd surgery. The 2nd surgery they divided the shunt and reroute some of the blood flow. The surgery itself had went fine but she had some trouble coming off the bypass machine. It took about 5 times coming off and going back on before she stabled out. Her blood pressures were all over the place her as well as her sats were all over. But finally got stable. Tuesday went as to be expected after her 2nd surgery. She was rather puffy and very red in the face. Which they said was normal after the 2nd surgery because there was more blood flow to the top half of the body. Tuesday night they started to notice twitching in her right arm and right eyelid and lipsmacking. She was starting to have seizures. So they hooked her up to an eeg to monitor her and put her on some anti seizure medications and a paralytic so she couldnt move. She had them intermittently tuesday night into wednesday and during the day wednesday. So late wednesday night they decided to take her down for a ct scan. The ct scan showed she had bleeding in the back of her brain but not enough to put pressure on her brain so they werent worried about draining it. She also had a part of her brain that they were calling a stroke, for whatever reason it wasnt getting oxygen to it for some time. They believe that was the part that was causing the seizures. So they kept her on the seizure medication and kept the eeg on and just monitored her. She was also having trouble keeping her sats up. Tuesday night and wednesday. So Thursday morning they took her back down to the cath lab to see if there was any obstructions. They found a vessel between the pulmonary artery and the left lung that was very narrow and it actually had folded over on itself. They put a stent in to widen the vessel to allow appropriate blood flow to travel to the lung. They needed to start her on a blood thinner to reduce the chance of a blood clot around that stent. But with the bleeding in her brain that was very scary, with thin blood there was more chance of bleeding in the brain and if it were to bleed into that deoxygenated part of the brain it would be harder for her to recover from that. So they started her on a very very tiny dose of blood thinner to be able prevent clots and hopefully low enough to prevent any more bleeding in the brain. Friday the 17th they took the EEG off because she had went a long period of time without a seizure. They took her off the paralytic and took out 2 of her chest tubes from surgery. Her sats seemed pretty stable after the stent got put in. Saturday they put her back on the EEG because she had spikes in her heart rate and blood pressure and they wanted to make sure they werent because she was having seizures they cant physically see. Sunday she got her last chest tube out and 2 of the 4 ivs out. And had a restful day. Monday the 20th, she got the EEG off again. She hadnt had a seizure since her ct scan. she had a follow up MRI which looked as good as to be expected no more bleeding in the brain. Some of her meds got weened and they prepared her to get her breathing tube out. She does have some acne and redness on her head due to eeg nodes but should go away in a few days with a good bath and benadryl. Hoping its onward and upward from here.
Organizer
millicent lahti
Organizer
Caledonia, MI