Chris and Nina would like to thank everyone for their kind donations to the fundraising page. It helped to get Erin access to a clinical trial in Frankfurt, but sadly this was not enough as she was massively against the odds with DIPG. The money raised will continue to support the family as they deal with their irreplaceable loss and they will also be making a number of donations to try and change this horrific situation for future families affected.
Chris and Nina have selflessly donated Erin’s tumour for further research into DIPG and we hope that this will help to make further breakthroughs and improve the chances of treating such an aggressive and uncontrollable illness.
The approximate £8,000 worth of ONC201 medication that was unused will be donated to another child fighting DIPG who was part of the same trial as Erin and whom’s parents Chris and Nina have been in touch with.
A donation will be made to CLIC Sargent - a registered charity who have provided lots of support to the family throughout Erin’s illness and who rely on such donations to continue their fantastic work.
A further donation will be made to Sheffield Children’s Hospital to put towards their improvements of the Oncology ward.
Any future fundraising events will be in support of Abbie’s Army who are doing fantastic work raising awareness about DIPG and trying to effect changes in government funding in the UK to improve research and treatment options.
Please continue to support this wherever possible.
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