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To help our son Dylan

Hello this is our son Dylan and he will be 8 yrs old in a few months which is hard to believe because of the past 5 years has been dedicated to the diagnosis and understanding of his health conditions to fighting with DME providers about equipment and so many other battles as well and this is why i wanted to update this gofundme page and to reach out because it's a very hard thing to do to ask for help at times and I will say we have and continue to do everything possible for dylan and its not been easy at the end of the day we are human and not everything is OK when it's about Dylan his behavior can be a loving boy but also can show aggressive Behaviors with hitting and biting us and also showing behaviors that could result in death as well him being a nonverbal and a very high risk of elopement boy and the x-linked creatine transporter deficiency and Lennox-Gastaut syndrome and Ataxic cerebral palsy and Epilepsy among other health conditions as well the Lennox-Gastaut syndrome and x-linked creatine transporter deficiency both are considered rare diseases and its no greater heartbreak to know there's nothing can be done about the health conditions but there is something that could possibly help Dylan and others and that is our campaign to do that and it's starting with a safe place for dylan to be able to play and move safely I know we are constantly changing for dylan and we have had help with getting some much needed repairs around the trailer and we are very thankful for all that has helped us and our journey with dylan and we love him with everything in our heart and we just can't do it ourselves but we can together thank you
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    Co-organizers (2)

    David Kingrea
    Organizer
    Christiansburg, VA
    Michelle Kingrea
    Co-organizer
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