THIS TOO SHALL PASS... (but when?)
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PLEASE SHARE MY STORY WITH OTHERS WHETHER YOU DONATE OR NOT, WHETHER YOU BELIEVE OR NOT. YOU MAY HELP CHANGE SOMEONE ELSES LIFE, NOT JUST MINE, WITH A SIMPLE TOUCH OF A BUTTON. THANK YOU :)
Hello to all of you.... This is my story in short form, as true to life as can be.
I have been sickly all my life, in one way or another. I have dealt with all the pain, the aches, the ups and downs and pushed on. I raised my Children singley and to the best of my abilities, into thee amazing adults they have become. I had a life plan ... raise my children and when they were out and on their own I would pursue my dreams and goals. Sad to say, it did not work out that way... I have attempted College twice now (because I am stubborn) and both times I had to drop out because of body pain and mostly memory loss and focusing issues due to the Medicine that I was put on for my health issues. What health issues you may be asking. Let me give you the run down.....
1992... Diagnosed with Probable MS (Multiple
Sclerosis)
Dr. found a cyst in the Pinneal Body of my brain
Lived with this knowledge for years, the pains for years with no clear answers or help for the pain. People assumed I was exaggerating or lieing about it. Worked and took care of my Children with determination and encouragement from family and friends.
2006... Mother passes away as I watch her take her last breath. THEE hardest moment ever in my entire life! My world is in an uproar for the next few Months. My body pain has subsided though, my heart pain has taken over.
Diagnosed with Diabetes II at a routine yearly
physical. Instantly put on Insulin and a daily,
pill form, med.
Diagnosed with mild Depression
2007... Diagnosed with Fibromyalgia (WOO HOO, I
now had a name for it!).Told
that this was probably the cause for all my
pain all of my life, and was
probably caused by a traumatic event which
occured in my childhood. Put
on Medicine and confirmed that I was not
lieing or crazy all these years!
Depression is worsening, suicidal thoughts are
occuring at times. (The loss of my Mother
haunts me).
Start losing teeth because of severe gum
disease caused by my Diabetes
Life goes on, years pass by. I work as I can or get food assistance. Depression deepens, lasts for days at times, I keep it to myself because I am embarrassed (I am the strong, happy go lucky, always funny one, they all believe). My then Dr. keeps telling me that my pain is caused by my depression, I beg to differ, but she is the Dr. I have multiple severe, undiagnosed, almost anywhere at any given time, body pain, guts hurt so bad at times,it hurts to breathe. All these different pains are so severe at times that it takes me off work for days even weeks at a time. My back hurts SO BAD that I have to sleep in a Recliner or sitting up on a couch. STILL... then Dr. insists I just need more counseling and higher doses of pain meds. I feel as if I am inconveniencing her with my constant complaints. Blood work is being done, tests are all being performed throughout this time and still nothing more to report. Still I work and take care of what needs to be taken care of with determination and encouragement from Family and Friends.
2013 ... Diagnosed with SEVERE Depression/Bi-Polar
Diagnosed with Degenerative Arthiritis in the
lower spine
Have to start wearing Bi Focals due to vision
issues related to my Diabetes
Have all that is left of my teeth pulled (23 at 1
time with pics to prove this)
and am now modeling a full set of Dentures
Then Dr. suggests that we try different meds, higher doses... NO! THE PAIN MEDS MAKE ME NAUSEAS, I AM NOT HURTING BECAUSE I AM DEPRESSED... I AM DEPRESSED BECAUSE I AM HURTING SO MUCH, FOR SO LONG, HAVE LOST MY ABILITY TO DO WHAT I USED TO DO, MY LIFE SUCKS! I NEED, WANT, AND DESERVE ANSWERS! I WANT MY LIFE BACK!!! No answers, no less pain, more suicidal thoughts (almost daily now). I am hopeless that my life will ever get better, I am convinced that this is just the way it is going to be. Put on that mask and keep doing what I have to, to get done what has to be done. Miss a month of work but at least my Job helps out as much as they are able, to keep me housed and warm. Once again Dear Friends and close Family fill me with encouragement.
2015 ... Move to a new City, find a new Dr. (MY ANGEL) He is bewildered by my Medical history and the unprofessionalism of "then" Dr. He takes one look at me and states what he knows is one of my issues, an Auto Immune Disease. He asks all sorts of questions, ones which I was never asked in the past 21 years! He says that he is going to start on me as if I had never seen a Dr. before, we will start with the most severe issue first and work down the line. He orders bloodwork, tests of all sorts, refers me to a Neurolgist, a Sleep Specialist, an OB/GYN, an Orth/Spine Specialist, into Physical Therapy, and Memory/Speech Therapy (HE CARES, HE REALLY CARES!) BRINGS ME TO TEARS WHEN I THINK OF THIS OR TALK OF THIS. HE GAVE ME BACK MY HOPES, MY PASSION FOR LIFE AND A BETTER WANTING TO STAY ALIVE!
At this point I am taken off work, I take a Medical leave without pay once again, June 26, 2015, was my last day of work. My Employer can give no more assistance.
I am now sleeping in a Hospital Bed that was so lovingly donated to me through an amazing charity and I am now able to sleep in my Bedroom once again after nearly 1 1/2 years and wake up, most of the time, pain free.
Diagnosed with 3 Bulging Discs in my lower spine
as well as the Degenerative Arthritis is
confirmed for same area.
Diagnosed with Celiacs Disease and told I now
HAVE TO eat Gluten Free (not a cheap diet)
and by the way, that Auto Immune
Disease that "my angel" said I had when he first
saw me.
Diagnosed with Sciatica
Diagnosed with severe Vertigo which has
reoccured a few times
Diagnosis probable but pending - Narcolepsy with
Cataplexy (VERY RARE)
I have a Colonoscopy as well as an Upper GI performed because my Mother passed away from Colon Cancer ... THANKFULLY NO COLON CANCER but this is where the Celiac Disease was confirmed (the main reason for most of my Gut pain, bloating, rash and swelling) all these years but was ignored or never investigated.
I have an abnormal Breast Exam and had to have a well overdue Mammogram performed... THANKFULLY NO BREAST CANCER.
I have a sleep study done and that Specialist orders an MRI of my brain and an EEG of my brain... he wants to do all the testing possible before diagnosing me with Narcolepsy. If indeed I do have Narcolepsy, he says my life will change drastically. He stated that only .05% of the population are actually diagnosed with this...
My OB/GYN finds abnormal cells during my Physical so I had a Coposcopy procedure done and she is checking both my Uterus and Cervix for Cancer. Results are pending....
I have a few visits to the ER for this or that and I have never been an ER kind of person.
As previously stated... my last day of work was June 26, 2015 and my return to work is indefinate until my Ortho/Spine Specialist examines me, does whatever he and "my angel" decide needs to be done and clears me to return.
I have had yard sales, sell on EBAY and Craigslist all that I can. I babysit older children when I am able because there is not much movement or lifting with them , to make a dollar or two. I am not just sitting here looking for handouts. I do not own much but what I do have I appreciate and it would be devestating to lose. I frequent food pantries and food trucks, even though there is not much Gluten Free food there (FOR WHICH I AM HOPING TO CHANGE) but there are the essentials. My Children willingly help out as much as they can but they have their own bills to take care of and besides they are just recently realizing how diar my situation has become. I have applied for Disability, 2nd time, but with a fantastic Lawyer this time around. I have exhausted all of my Neighborhood resources as well as my family and friends resources.
I know that there will be people reading this and criticizing me for putting my story "out there", "complaining", "over exaggerating", "begging" but then I also know, in my heart, that there will be people reading this and saying, "wow, someone else out there knows what I am going through, what I have been through" and yet others, who really know me, reading this and saying "for her to go to this extreme, she has to be in a diar need" because like I said, they really know me and know that I HAVE NEVER BEEN ONE TO ASK FOR HELP, HAVE ALWAYS HAD A HARD TIME ACCEPTING HELP, AND HAVE ALWAYS PULLED THROUGH. The total amount of funds that I have displayed is the amount I am figuring will cover thee necessities for the next few months, until I am released by "my Angel" to return to work.
This is THEE most difficult thing that I have ever had to write but I do hope that when you do read this... you take from it, a little bit of knowledge, a little bit of hope, a bit of compassion and understanding, of me, my situation and my need. I am grateful to be alive, I just want to feel alive again. I look forward to the day I can take care of my needs on my own once again. In the meantime, I am continuing to give of myself in the form of volunteering when ever my body and mind allow, I am truly looking forward to this chapter in this book we call life to end. Thank you. Prayers, Positive Thoughts and Vibes extended to you and yours.
P.S. Sorry I lied ... this was not short as I first stated it would be... but then again... nothing in life is at it seems at times :)
PLEASE SHARE MY STORY WITH OTHERS WHETHER YOU DONATE OR NOT, WHETHER YOU BELIEVE OR NOT. YOU MAY HELP CHANGE SOMEONE ELSES LIFE, NOT JUST MINE, WITH A SIMPLE TOUCH OF A BUTTON.
THANK YOU ONCE AGAIN!
Hello to all of you.... This is my story in short form, as true to life as can be.
I have been sickly all my life, in one way or another. I have dealt with all the pain, the aches, the ups and downs and pushed on. I raised my Children singley and to the best of my abilities, into thee amazing adults they have become. I had a life plan ... raise my children and when they were out and on their own I would pursue my dreams and goals. Sad to say, it did not work out that way... I have attempted College twice now (because I am stubborn) and both times I had to drop out because of body pain and mostly memory loss and focusing issues due to the Medicine that I was put on for my health issues. What health issues you may be asking. Let me give you the run down.....
1992... Diagnosed with Probable MS (Multiple
Sclerosis)
Dr. found a cyst in the Pinneal Body of my brain
Lived with this knowledge for years, the pains for years with no clear answers or help for the pain. People assumed I was exaggerating or lieing about it. Worked and took care of my Children with determination and encouragement from family and friends.
2006... Mother passes away as I watch her take her last breath. THEE hardest moment ever in my entire life! My world is in an uproar for the next few Months. My body pain has subsided though, my heart pain has taken over.
Diagnosed with Diabetes II at a routine yearly
physical. Instantly put on Insulin and a daily,
pill form, med.
Diagnosed with mild Depression
2007... Diagnosed with Fibromyalgia (WOO HOO, I
now had a name for it!).Told
that this was probably the cause for all my
pain all of my life, and was
probably caused by a traumatic event which
occured in my childhood. Put
on Medicine and confirmed that I was not
lieing or crazy all these years!
Depression is worsening, suicidal thoughts are
occuring at times. (The loss of my Mother
haunts me).
Start losing teeth because of severe gum
disease caused by my Diabetes
Life goes on, years pass by. I work as I can or get food assistance. Depression deepens, lasts for days at times, I keep it to myself because I am embarrassed (I am the strong, happy go lucky, always funny one, they all believe). My then Dr. keeps telling me that my pain is caused by my depression, I beg to differ, but she is the Dr. I have multiple severe, undiagnosed, almost anywhere at any given time, body pain, guts hurt so bad at times,it hurts to breathe. All these different pains are so severe at times that it takes me off work for days even weeks at a time. My back hurts SO BAD that I have to sleep in a Recliner or sitting up on a couch. STILL... then Dr. insists I just need more counseling and higher doses of pain meds. I feel as if I am inconveniencing her with my constant complaints. Blood work is being done, tests are all being performed throughout this time and still nothing more to report. Still I work and take care of what needs to be taken care of with determination and encouragement from Family and Friends.
2013 ... Diagnosed with SEVERE Depression/Bi-Polar
Diagnosed with Degenerative Arthiritis in the
lower spine
Have to start wearing Bi Focals due to vision
issues related to my Diabetes
Have all that is left of my teeth pulled (23 at 1
time with pics to prove this)
and am now modeling a full set of Dentures
Then Dr. suggests that we try different meds, higher doses... NO! THE PAIN MEDS MAKE ME NAUSEAS, I AM NOT HURTING BECAUSE I AM DEPRESSED... I AM DEPRESSED BECAUSE I AM HURTING SO MUCH, FOR SO LONG, HAVE LOST MY ABILITY TO DO WHAT I USED TO DO, MY LIFE SUCKS! I NEED, WANT, AND DESERVE ANSWERS! I WANT MY LIFE BACK!!! No answers, no less pain, more suicidal thoughts (almost daily now). I am hopeless that my life will ever get better, I am convinced that this is just the way it is going to be. Put on that mask and keep doing what I have to, to get done what has to be done. Miss a month of work but at least my Job helps out as much as they are able, to keep me housed and warm. Once again Dear Friends and close Family fill me with encouragement.
2015 ... Move to a new City, find a new Dr. (MY ANGEL) He is bewildered by my Medical history and the unprofessionalism of "then" Dr. He takes one look at me and states what he knows is one of my issues, an Auto Immune Disease. He asks all sorts of questions, ones which I was never asked in the past 21 years! He says that he is going to start on me as if I had never seen a Dr. before, we will start with the most severe issue first and work down the line. He orders bloodwork, tests of all sorts, refers me to a Neurolgist, a Sleep Specialist, an OB/GYN, an Orth/Spine Specialist, into Physical Therapy, and Memory/Speech Therapy (HE CARES, HE REALLY CARES!) BRINGS ME TO TEARS WHEN I THINK OF THIS OR TALK OF THIS. HE GAVE ME BACK MY HOPES, MY PASSION FOR LIFE AND A BETTER WANTING TO STAY ALIVE!
At this point I am taken off work, I take a Medical leave without pay once again, June 26, 2015, was my last day of work. My Employer can give no more assistance.
I am now sleeping in a Hospital Bed that was so lovingly donated to me through an amazing charity and I am now able to sleep in my Bedroom once again after nearly 1 1/2 years and wake up, most of the time, pain free.
Diagnosed with 3 Bulging Discs in my lower spine
as well as the Degenerative Arthritis is
confirmed for same area.
Diagnosed with Celiacs Disease and told I now
HAVE TO eat Gluten Free (not a cheap diet)
and by the way, that Auto Immune
Disease that "my angel" said I had when he first
saw me.
Diagnosed with Sciatica
Diagnosed with severe Vertigo which has
reoccured a few times
Diagnosis probable but pending - Narcolepsy with
Cataplexy (VERY RARE)
I have a Colonoscopy as well as an Upper GI performed because my Mother passed away from Colon Cancer ... THANKFULLY NO COLON CANCER but this is where the Celiac Disease was confirmed (the main reason for most of my Gut pain, bloating, rash and swelling) all these years but was ignored or never investigated.
I have an abnormal Breast Exam and had to have a well overdue Mammogram performed... THANKFULLY NO BREAST CANCER.
I have a sleep study done and that Specialist orders an MRI of my brain and an EEG of my brain... he wants to do all the testing possible before diagnosing me with Narcolepsy. If indeed I do have Narcolepsy, he says my life will change drastically. He stated that only .05% of the population are actually diagnosed with this...
My OB/GYN finds abnormal cells during my Physical so I had a Coposcopy procedure done and she is checking both my Uterus and Cervix for Cancer. Results are pending....
I have a few visits to the ER for this or that and I have never been an ER kind of person.
As previously stated... my last day of work was June 26, 2015 and my return to work is indefinate until my Ortho/Spine Specialist examines me, does whatever he and "my angel" decide needs to be done and clears me to return.
I have had yard sales, sell on EBAY and Craigslist all that I can. I babysit older children when I am able because there is not much movement or lifting with them , to make a dollar or two. I am not just sitting here looking for handouts. I do not own much but what I do have I appreciate and it would be devestating to lose. I frequent food pantries and food trucks, even though there is not much Gluten Free food there (FOR WHICH I AM HOPING TO CHANGE) but there are the essentials. My Children willingly help out as much as they can but they have their own bills to take care of and besides they are just recently realizing how diar my situation has become. I have applied for Disability, 2nd time, but with a fantastic Lawyer this time around. I have exhausted all of my Neighborhood resources as well as my family and friends resources.
I know that there will be people reading this and criticizing me for putting my story "out there", "complaining", "over exaggerating", "begging" but then I also know, in my heart, that there will be people reading this and saying, "wow, someone else out there knows what I am going through, what I have been through" and yet others, who really know me, reading this and saying "for her to go to this extreme, she has to be in a diar need" because like I said, they really know me and know that I HAVE NEVER BEEN ONE TO ASK FOR HELP, HAVE ALWAYS HAD A HARD TIME ACCEPTING HELP, AND HAVE ALWAYS PULLED THROUGH. The total amount of funds that I have displayed is the amount I am figuring will cover thee necessities for the next few months, until I am released by "my Angel" to return to work.
This is THEE most difficult thing that I have ever had to write but I do hope that when you do read this... you take from it, a little bit of knowledge, a little bit of hope, a bit of compassion and understanding, of me, my situation and my need. I am grateful to be alive, I just want to feel alive again. I look forward to the day I can take care of my needs on my own once again. In the meantime, I am continuing to give of myself in the form of volunteering when ever my body and mind allow, I am truly looking forward to this chapter in this book we call life to end. Thank you. Prayers, Positive Thoughts and Vibes extended to you and yours.
P.S. Sorry I lied ... this was not short as I first stated it would be... but then again... nothing in life is at it seems at times :)
PLEASE SHARE MY STORY WITH OTHERS WHETHER YOU DONATE OR NOT, WHETHER YOU BELIEVE OR NOT. YOU MAY HELP CHANGE SOMEONE ELSES LIFE, NOT JUST MINE, WITH A SIMPLE TOUCH OF A BUTTON.
THANK YOU ONCE AGAIN!
Organizer
Pamela LeCompte
Organizer
Grand Haven, MI