#Roomtobreathe

Owen Sedey our 4 year old newphew/grandson/son/brother/superhero. He was born with Escobar Syndrome, the genetic form of Arthrogryposis, and has contractures in almost all of his joints. Progressive Scoliosis has challenged the space Owen's chest has for lung growth. He had VEPTR (Vertical Expandable Prosthetic Titanium Ribs) placed when he was one year old for rib cage expansion. Owen has had 18 surgeries to date.  We are having a golf tournament on Monday, September 8, 2014 at James Baird Golf Course  hosted by his grandfather, Brian Collins.  If you cannot make it, donations can be accepted here.  Thank you to all of our friends and family for the support!

The Collins, Carlisle & Sedey Families

  • Keziah Hinchen 
    • $50 
    • 81 mos
  • Shanedryia Lewis 
    • $50 
    • 81 mos
  • Bill Collins 
    • $200 
    • 81 mos
  • Melonie Claudio 
    • $25 
    • 81 mos
  • Dave & Nancy Clark 
    • $20 
    • 81 mos
See all

Organizer

Carla Collins 
Organizer
Myers Corner, NY
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