Kenny Porterfield is organizing this fundraiser on behalf of Mackenzie Toney.
Nova was around two months old when everything began. She has been through many specialist appointments, procedures, and surgeries. She has had multiple set up tubes placed since, genetic testing, as well as diagnostic producers. She had a CT done in December that revealed a remarkable amount of damage to her lungs. We know so far that she has: Congenital bronchomalacia, dysphagia, wheezing, chronic cough, chronic recurrent bronchiolitis, recurrent pneumonia, recurrent otitis media, bilateral. Doctors are trying to find the source of all of this but getting a clear diagnosis has been difficult. She is in the process of genetic testing for primary ciliary dyskinesia and childhood interstitial lung disease. On January 22, 2018, Nova will undergo surgery and various procedures. She is having a ciliary biopsy, biopsy with EGD, adenoidectomy, laryngoscopy bronchoscopy direct, new ear tubes, endoscopy nasal, bronchoscopy flexible, PH probe impedance. She will be admitted for 7 days to follow for aggressive IV antibiotics and airway clearance. She currently takes many medications daily and is in the process of waiting for a vest to be delivered to help her daily airway clearance therapy at home. We are hoping that through all of this they will be able to find a treatment that can help slow the progression of damage that is happening to her lungs daily and allow her to grow up and live a happy, healthy life.