
HELP NEN GET LIFESAVING OPERATION ( urgent! )
Donation protected
( UPDATE! )
Thank you all for your help!! Every dollar is appreciated. Although we have raised a lot, my mother has informed me for the next step she needs 10,000!!! Anything and everything is greatly appreciated. Thank you all
Hello, My name is Sebastain
I live in Hutchinson, Kansas. I am starting this in an attempt to find the funds to find a doctor who will consider operating on my youngest sibling. She has Craniosynostosis, as a result of being born with Apert Syndrome. ( A birth defect causing damage to skull, hand, and feet bones, and countless more defects )
I have spent many nights in waiting rooms, unsure if my sister will come back out alive.
Nen was born in 2006. Me and my family are told she won't live long at all. Then they told us we shouldn't expect many years. I am blessed to say it is now 2020 and she walks, talks, sings, jumps and stays up late like any other girls her age. She is easily the strongest, bravest young woman I've ever met. Nobody has given up on her. Don't think anyone will. She does need this surgery to make more space in her skull, so that her brain can continue to grow with the rest of her body. Before this, my mother has always been amazingly on top of finding ways to pay the bills for her surgeries and appointments, while taking care of three bratty kids and working full time. I have no doubt in my head that one way or another, my family will come together strong and get through this. That being said, I am 20 years old, my mother's first born. Some people may not consider me very old, maybe not even an adult. Still, i have
lived through a lot of very very rough times. A lot of fear and loss. My mother always got me through it. She has never let me down. I cant stand by and watch her be forced to take out loans that will bankrupt her. She owns her own buisness. Insurance isn't able to cover the procedure. That doesn't fall on her. My mother won't loose her livelihood because healthcare is not reddilly available.
She has already done enough for Nen. I hope we can help now.
Thank you so much ❣️❣️❣️My sister will be old and grumpy one day. IK it!
Co-organizers (2)
Sebastain Sheahan
Organizer
Hutchinson, KS
Susie Rohloff
Co-organizer