Hi, I'm Libby!

~ I was born with an unpredictable, progressive, neurological disorder called,

"Neurofibromatosis-NF".

~ NF causes tumors to develop on my nerve ending and when this happens, it

causes my affected nerve endings to "push upward" from just BENEATH the surface of my skin.

~ My NF TUMORS ("fibromas") are NOT actually"on top" of my skin nor are they 'cysts' or 'skin tags' like those having a cosmetic appearance.

~ NF causes pain both physically and mentally and one reason for this is because NFers have EXTREMELY SENSITIVE NERVE ENDINGS.

A claim for pain, is extremely valid for this very reason.

~ As an added bonus, NF comes along with always having nearly constant itchy nerve endings, especially when there are new NF tumors developing.

~ There is currently no cure for NF but researchers are always trying to develop ways of stopping the progression of the disorder.

~ My fingers are crossed in hopes of one day finding an opportunity for me to participate in an NF trial that could benefit from applying a gene-editing therapy known as CRISPR.

~ If anyone happens to hear about an opportunity like this, PLEASE.REACH OUT TO ME ASAP!

Thank you so very much for your warm wishes and on-going support to help improve my overall quality of life.

~ I'm seeking financial assistance to help pay for co-pays, premiums, and my travel expenses for repeated NF Tumor Removal Electrodessication Surgeries.

~ These special surgeries are performed by a highly reputable & passionate NF Surgeon, Dr. Andre Panossian in Pasadena, California.

~ These surgeries alleviate a great portion of the regular pain that I experience on a daily basis by removing hundreds of my tumors ("neurofibromas", 'bumps') from my body in only a couple of hours.

Overall recovery with having the Electrodessication surgery is about two months.

Patients will usually experience a mild, annoying, burning-like sensation during the healing phase most always will come with a lot of itchy nerve endings.

(If you're having this surgery, ask for hydroxyzine 50mg tablets for as needed. You'll definitely thank me later.)

~ I look forward to amazing & positive results because the surgery always improves my overall quality of life since NF has always had this unpleasant way of severely impacted by overall health.

I am a HUGE advocate for raising much needed awareness for Neurofibromatosis.

~ In 2016, I created an NF group on Facebook that is only for people who were born with NF called, "Faces of Neurofibromatosis". Our mission is to increase NF awareness by showing the FACES of Neurofibromatosis and how it affects all of us so differently with different severities.

~ As of July 24, 2026, we've reached 28,000+ NF members worldwide!!

This is mostly where I find myself always trying to inspire & encourage other NFers to join me in the movement to ADVOCATE to NF EDUCATE so that we can prove the much greater need for there to be more Physicians & treatment options for NF available on a global level.

~ I love helping & supporting the NF

Thank you ever so much for your kindness & generosity.

~Have a grateful day and to NFers, please always remember...

"If We're Not Seen,

We Can't be Heard."