Morgan is a vivacous 4 3/4 year old (her words not mine) beautiful soul. I have read many times that when a chld is sick, they have this gentle spirit and this understanding of what love feels like. Maybe because they know what daily pain feels like, when love is shown they grasp it, they hold it and they show it. That's our Morgan!
1 day after Morgan was delivered she had not passed her meconium plug. The hospitial transferred her immediately to the NICU unit. After flushing her out she eventually passed it and was released. 5 months after delivery and many days, nights and hours of trying to figure out the babies cries and no bowel movements, the Doctors diagosed Morgan with Hirschsprungs disease. Let me make this simple because those words meant nothing to me at first. Hirschsprungs is a disease that children are born with. As adults we understand that when we eat food, it goes through our stomach's into our colon/intestine and we have a bowel movement. What the big surprise here is, IT DOESN'T DO IT AUTOMATICALLY! The ability to move that food/stool is pushed through our colon with ganglion cells which keep moving it down the colon and yes, right out of us. Hirschsprung children don't have all those cells and some have none! Those words have become Morgan's everyday life. Picnic's are based around what she can handle, Mom has tried Gluten free, Lactose Free, anything free that would help Morgan have a regular bowel movement. 4 and 3/4 years later we are no closer to a bowel movement than we were at 1 day old.
It's usually a great day when the day care center calls and says your child needs to be advanced into the next level...usually! In Morgan's case that meant attending kindergarten in pull ups, with the constant smell of and having "poop" in her pants.
We have found a Surgeon that believes the Appendicostomy (Mic-key button) procedure will help Morgan to have a more normal life. This tube is surgically placed through her stomach wall into her colon. She will be given a daily enema thru the tube and hopefully this will allow her to wear regular girl panties to Kindergarten and to play and be around the children as every normal child wants to do. We also have been informed that this surgery may not be the last. Because insurance only pays a small part of this rare disease, we ask for any help you may give us and appreciate any amount you can afford to fund this cause. Our prayer is that Morgan is able to attend school just like your child and every other child out there without ridicule and embarrassment for something she has no control over. Bullies cannot always be stopped, but we pray this surgery can stop them in their tracks!
- Ali Gordon
- Donna Virtue
- jay thalheimer
- Maryann McNealy Redmon