Let's hear it for Liam (the beautiful boy above) and all the tough little lions out there battling HLHS!!! Hypoplastic left heart syndrome is a very rare congenital heart disease in which the left ventricle of the heart (the chamber that pumps oxygenated blood to your body) is underdeveloped. There are a variety of ways that HLHS can manifest itself and each has a very specific set of surgeries and treatments that are required to ensure a healthy and strong development. The goal here is to raise awareness for HLHS as well as $5000 to donate to research focused on this challenging disease.
There are tons of websites that outline the most common surgeries needed by most children with HLHS (reference and videos here: http://www.chop.edu/service/cardiac-center/heart-conditions/hypoplastic-left-heart-syndrome-hlhs.html). Suffice it to say it's one tough way to be welcomed into this world and for the parents of these brave children it is quite challenging and life changing.
So what's the point of this page? Well every kid with HLHS needs a cheerleader. My friends Josh and Mindy have a beautiful 2 year old boy named LIam who has just come out of his stage 3 (Fontan) procedure. They are an amazing support network for Liam while being great parents to their older son, Noah. It's tough being a parent of a child with HLHS- always being strong for your child and cheering them on. That got me thinking...who is cheering on the parents of children with HLHS?
That's where we come in!!! When we hit our donation level of $5000.00 USD myself and any of you willing to participate will outfit ourselves in matching cheerleader uniforms (dear Mindy - I apologize before hand for how ridiculous I will look) and perform a cheer to be recorded for the kids with HLHS and the loving parents that support them. 100% of the proceeds will go to research to focus on better diagonsis and treatment of children with HLHS.
So come one, come all. Donate a few dollars, or donate your time and join us in the cheer! I'm located in Connecticut, so once we hit our goal we will coordinate an event in CT to get together and show our support for the patients and families battling HLHS. And of course we will practice, perfect and perform/record our cheer!
Please share with friends and family and anyone who might have the means and ability to contribute.
"Never doubt that a small group of thoughtful, committed citizens can change the world; indeed, it's the only thing that ever has." - Margaret Mead
Let's do our part to change the world...
Much love to you all,
Michael and Nicole Mohammadi
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