EDS is a group of inherited disorders that affect your connective tissues; primarily your skin, joints and blood vessel walls. Simply put, Jes’ body has quit holding itself together, causing her joints to dislocate and other body systems to refuse to function normally. This is a progressive degenerative disease and we know that she will continue to face worsening symptoms.
Living with this disorder has limited Jes’ ability to function on her own, making it necessary to use a mobility scooter and numerous other assistive devices. The costs associated with the adaptations we have had to make in our life are adding up quickly. The biggest cost we are facing, in the immediate future, is a van to carry Jes’ scooter so that she can be more independent. Eventually, we also know she will need an electric wheelchair. We anticipate that just the purchase of the van will cost around $40,000. We know it is a burden, but are turning to friends and family to ask for help in raising $20,000; half of this amount. Please know that even small donations help and we appreciate them. For those of you who don’t have the resources to donate anything – please know that we appreciate your continual love and support and willingness to learn about EDS.
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