Medical Needs for Draco & His Family

UPDATE as of April 9, 2025:

Please bear with me as there is quite a bit of information to share here.

My 7 year old grandson, Draco, was in the hospital from November 26, 2024 to December 11, 2024. He was very ill and after a multitude of testing, including x-rays, CT's, ultrasounds, and an MRI. He was diagnosed with mycoplasma pneumonia and also had rhabdomyolysis. While in the hospital, he had 4 or 5 strokes and a grand mal seizure.

During this hospitalization, it was discovered that he has a heart defect called Bicuspid Aortic Valve. This means he has to see a cardiologist at least once a year. They need to put a catheter into his artery and up into his heart to look for "passageways" that aren't supposed to be there and could have caused the strokes. If they find any they will plug them while they are in there. Bicuspid Aortic Valve, BAV, is a genetic condition and they advise that everyone in the family get tested, including his siblings who are 4, 2, and 5 months old. This will be very expensive. We're looking at roughly $15,000 at minimum.

He also needs some genetic testing done to rule out some disorders that could have caused him to be so ill.

Draco has recovered very well and we praise God for that but we still have a long road ahead. His insurance denied a lot of stuff last year and then dropped him at the beginning of this year. They are looking into getting a different insurance but they're struggling to find something affordable. Until then, he still has testing, followups, and procedures. This is why this GoFundMe is still open.

The first $4300 we raised has helped cover some of these costs already and we are greatly appreciative of everyone who donated.

Please consider donating, if you haven't already, and share this with the world so we can continue to get him the treatment he needs, and treatments his siblings may need, until their parents can get insurance that suits their needs.

If 3,500 people donated just $10 each, we would reach this goal.

Thank you in advance and God Bless you all!

Crystal Stevenson

aka Amma to my grandbabies.

Photo from his most recent cardiologist appointment:

Photo from his 7th birthday party a week ago:

Photos from the hospital stay: