Our family is trying to collect funds to attend a medical conference for our daughter Lily. 6 years ago we were blessed with a very special little girl with a very rare disability called Cornelia DeLange Syndrome
( cdlsusa.org ) It has opened up an entire new world for us, yet in many ways as her Mother makes me feel alone at times, being able to attend conference where there are many familes who face the same daily health and emotional challenges as we do gives me an unimaginable peace of mind and sense of connection to the world around us. As of now we are unable to attend this very important conference due to the financial inability to go. I tried to except the idea of not going but it's so hard to give up the thought of everything that the conference offers to our family. I can't imagine missing the memories, comfort, healthcare information, friendships, hope, and many other things that conference gives us.. I have to at least try to come up with a way to go to. We are forever grateful to anyone able to help our family. Please help us spread our story and achieve our goal.
Much Love and Many thanks,
Lily Molett & Family <3