Lily is a sweet blonde haired, blue eyed 5 year old that’s undergone anesthesia EVERY. THREE. MONTHS. since she was only 8 months old.
This will continue for a lifetime UNLESS we can get her to Italy - that is her BEST hope to becoming VM FREE!
25x under anesthesia before her 5th birthday.
I’m fighting with everything in me to make sure she doesn’t have to face 25 more.
19 treatments, 5 debulking surgeries, tonsils and adenoids removed, and an emergency appendix removal at only 3 years old.
Lily was born with a Venous Malformation on the inside of her entire left cheek and part of her lip.
(A venous malformation is a RARE condition where veins grow incorrectly, creating a tangled cluster that continues to grow as the child grows. It causes pain, swelling, and serious complications — especially in the face.)
We’ve been told over the years —
3 days old - “It’s just busted blood vessels.”
-local pediatrician.
1 month old - “It’s a hemangioma” and she will never be a candidate for surgery or treatment.
- New Orleans
8 months old - “Venous Malformation” and she’ll need treatment and surgeries all her life.” -Arkansas
5 years old - “Venous Malformation” and she will only need about 2 treatments and MAYBE one more in 5-10 years then she’ll be VM FREE.
-Italy
The treatment that Lily so desperately needs to become VM FREE is called ‘Electro Sclerotherapy.’
And this treatment is ONLY available in Italy. Unfortunately, it’s not cheap.
The total cost for 1 treatment is about $50,000.
That includes the procedure cost, flights,
10-14 day hotel stay, follow up visit, transportation, food, and funds to keep us afloat so I don’t have to choose between bills and my baby’s care.
Lily’s 2nd procedure in Italy will be in June or July 2026. 3-4 months after the 1st procedure.
I’m setting our goal to $100,000 — to cover both treatments, start to finish, so Lily can FINALLY get the care she deserves!
We absolutely cannot do this without you.
I know we can pull this off - TOGETHER.
I promised her that oneday she wont have this on her mouth or lip anymore.
The day I stop pushing is the day I stop breathing!
DID YOU KNOW??
Only 0.01% of people worldwide are born with a Venous Malformation.
Only a small number of children with venous malformations ever receive access to the specialists they truly need.
We refuse to let Lily fall into those statistics!!
Follow Lily’s Story and walk this journey by her side.
FB page —
‘Lily’s Journey with Venous Malformation’
Please help get Lily to Italy






