- J
- K
Lila’s Story:
Since Katelyn was pregnant with Lila, the White Family knew they would be bringing a special little girl into this world. At 19 weeks gestation they found out Lila would be born with bilateral clubfoot. When Lila was born they started the correction of her feet as soon as they could. Lila was put in ten sets of plaster casts and under went two tendon tenotomies all before the age of one. Halfway through her correction, her family decided it was best for her to see a clubfoot specialist out of state. The first few months they traveled weekly to see her orthopedic specialist in Missouri and now they continue to go every six months. Once they finally started to feel like things were getting under control with her feet, Lila began showing signs and symptoms of more things going medically wrong. At a year and a half old Lila was diagnosed with Triple X Syndrome, also known as Trisomy X, but the White Family still didn’t have the answers they needed on what all was going on with her. They sought out the opinion of a neurologist by the suggestion of Lila’s orthopedic specialist. Unfortunately the neurologist here in Ohio missed something crucial in her health that the neurosurgeon in Rhode Island found. At two years old Lila was also now diagnosed with Occult Tethered Cord. Lila is now scheduled for spinal surgery to hopefully correct all her symptoms on October 22nd at Hasbro Children’s Hospital in Providence, RI. The White Family has been through the ringer continuously with their daughters medical problems and yet they haven’t asked for help once. I’d like to take the time to help do our part and support them in any way we can while they try their best to get their daughter (and also their older son at home) through these hard times. They will be away for three weeks while their daughter undergoes a major spinal surgery. They will be away from home, work, family, and friends. With all they have going on I’d like to lessen their financial burden through all of this so that they can do all they can to focus on their daughter and get their family through this hardship. I could never imagine watching my child go through anything that Lila has gone through. She is the bravest little girl we have all been blessed to know and love. No amount is too little and we would graciously appreciate if you would share this link. I know their family will be forever grateful to each of you and we ask that you continue to keep them in your thoughts and prayers just as we know they would for all of us. Thank you.
Xoxo,
Helena
Organizer and beneficiary
Katelyn Lebron
Beneficiary

