Never in a million years would I have ever thought of hearing a doctor advise a husband and wife within 5 minutes of a sonogram on their 4 year old daughter’s heart, that they would be needing to proceed with open heart surgery because the “device” isn’t going to work. Mind you there was no preface to the conversation.......
Even the word “device” 5 minutes into what we thought was going to be another normal “just checking” “everything is going to be okay” doctor’s visit dropped our hearts into the pits of our stomach’s, and our eye’s filled up with tears coming to terms with the reality of the situation. Our world went upside down in those few short minutes. Totally awestruck... T-boned metaphorically and mentally.
Having your four year old daughter look up at you from the table she was laying on with gel on her chest and watching loud cartoons thankfully she was immersed in her fave; I know why they play them so loud when the docs want to have a straight foward talk with the parents; when those words were (open heart surgery echoing in your mind) said, was the moment I knew we had to pull it together, on every fiber of strength within ourselves, not to break down, not to shed a tear, looking over at her and staring back at the sonogram machine watching her heart work in over drive and out of sync, saying to ourselves ; we'll be the strength she'll need to draw from, for the road we are about to venture down.
From what was told by us previously, that a heart mur mur is normal and your child will grow out of it, to having a full on “we’ll need to schedule for open heart surgery within the month,” being shell shocked is just falling short, and overwhelmed as a parent doesn’t even begin to describe all of the emotions that were flooding through our minds.
The surgeon will have to take a graft her own heart to put in place where there is no division of left/right heart side so it pumps efficiently. After they take the graft, they will take a piece of a heart donor, and replace where the graft was taken. Plainly, she has a hole in her heart.
How does any one dad or one mom in their minds deals with this.. if it was your child?????? LOVE is all I know. Bottom line...Love her and treat every day as the same. Our Lainey is beautiful, fun, loving, sweet, silly, and a fart in a wind storm. She's a toot that varies!!! LOL
We're asking for support from our family and friends, from all walks of our lives, that you hold our daughter high in prayer as the weeks ahead loom towards us. Lainey's brother, Filson Stanley, 1 year and 5 months old, says thank you in advance. He LOVES her SO much... as every young sibling does. He so needs her to chase after and piss her off... lol.... xoxox
We know the road ahead isn’t going to be easy, and that the financial stress is about to impart a huge burden on us. It already has with Cat Scans, MRI's, driving 1.5 hours each way and it is not going to let up.... our heart is Lainey. Surgery is October 17th. We Check in on the 16th to get her acclimated... which is warranted.
If anyone can help us at this time, we would sincerely be gratefully appreciated for a prayer or anything you can give to help ease the burden of this journey we’re about to undergo with our precious, sweet natured, silly, and loving 4 year old daughter, Lainey Lucile Varner.
In God we trust our faith that He’ll help us overcome the obstacles ahead.
Thank you. God bless.
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