Kolbe Joe’s DMI Therapy!

Hello!

We are traveling cross country for our first DMI Therapy intensive in April 2024 and need your help!

Kolbe Joe was born with Type 1 Spinal Muscular Atrophy (SMA). SMA is a genetic neuromuscular condition that causes muscle weakness due to the loss of motor neurons. It is the number one genetic disease causing the death of infants. 

Without treatment, most children with Type 1 SMA are expected to live for less than two years. About 1 in 10,000 children are born with SMA. We are so grateful for the advances in treatment which have saved his life. He is doing things already that we have prayed for and are so blessed to have so much support surrounding him.

This DMI intensive will be 2 hours of physical activity everyday for two weeks to help Kolbe reach milestones we never thought would be possible. 

DMI therapy “seeks to trigger neuroplastic changes in the brain. Every move we make has a connection in the brain to support the task or function. DMI helps the child make those connections, so they can gain and improve their milestones.” 

We couldn’t be more thrilled for Kolbe to have this opportunity as we have seen and heard so many amazing kiddos with SMA benefit tremendously from a DMI intensive. These programs, however, come with a large financial burden. 

Please help us raise some money and let’s see what our little boy can do!

 

*All donations will be used directly towards the cost of the DMI intensive. Our goal includes estimated funds for flights, room and board, and transportation. Every little bit helps us!