
Knox Squad - Help Knox kick Leukaemia's butt
Donation protected
On the 25 April 2020 Knox was diagnosed with T Cell Acute Lymphoblastic Leukemia, he is 3 years old.
The only symptoms he had were swollen lymph nodes in his neck and a lot of bruising over his body. Now anyone who knows Knox, is aware of how far he pushes his limits. So bruising is not an unusual thing (haha!). But mum and dad were a bit worried about them so decided to get them checked. Knox had a blood test early on Anzac Day morning and within an hour of getting home from the Hospital we received the worst phone call of our lives. Knox was required back at the Women's and Children's Hospital immediately as he was showing markers for Leukaemia. We are still reeling from this diagnosis and somehow it still does not seem like reality.
To fight this he will begin with intensive chemotherapy for one month, which involves treatment every second day. He will then enter the remission stage which involves weekly chemotherapy and will last for 6-8 months. He will then move to maintenance which is monthly chemotherapy for another 2 years.
This treatment has a 90% cure rate, and Knox has a lot of factors in his favour. His age, the Doctors believe it was caught within 2-3 weeks of it beginning which is very early for this type cancer, and of course his amazing spirit and determination just to name a few. On the day after diagnosis Knox was in Hospital and had an IV line in both of his arms to administer medicines. Faced with that moment most adults, let alone children, would be hyper aware of the foreign objects in their arms. Knox was climbing up the back of his adjustable bed and jumping off into the middle. His strength is astounding.
As the treatment kills off the cancer, it will also kill many of his healthy cells. Knox will have no immune system for quite some time, any virus or infection is dangerous for him. To add to that we are going through a global pandemic which has put neccessary but severe restrictions on our everyday lives. Amanda and Ben have had to navigate this diagnosis and the emotional impact on the children and themselves with strict limitations and guidelines. During the hospital stay Knox's sister Lyla, who is 5, was not allowed to visit him at all in Hospital.
We are truly blessed to live in a Country with a health system that is second to none. However there are many out of pocket expenses which are not covered by Medicare. Knox requires a minimum of 7 different medicines multiple times a day while he is at home, the cost of those medicines plus the sterile equipment required to administer them is on the family. Amanda has been forced to resign, eliminating a significant portion of the family income. Which in reality of multiple hospital visits and stays if a virus is caught, will mean she is unable to work for a few years.
Because of Knox's ability to fight off any germs we are forced to limit our physical interactions with others. The emotional toll this is having is significant and it also means we are unable to accept any physical help from our dear family and friends. We have decided to start this fund to help Knox FIGHT and BEAT this cancer. It will be used for purchasing medical equipment and supplies, car parking and associated costs of getting to and from the Women's and Children's Hospital multiple times per week, assisting with essential bills and food, and perhaps the most critical of all of these to attempt to give Knox and Lyla some joy in this time where there is no certainty or normality.
Join us in Team Knox and lets help our champion defeat this disease.